EIN 36-2916466

Les Turner ALS Foundation

IRS 501(c) type
501(c)(3)
Num. employees
22
City
Year formed
1977
Most recent tax filings
2023-12-01
Description
The Les Turner ALS Foundation is the only independent publicly supported non-profit organization in the Chicago-area devoted solely to the treatment and elimination of amyotrophic lateral sclerosis (ALS).
Also known as...
Les Turner Amyotrophic Lateral Sclerosis Foundation
Total revenues
$2,682,408
2023
Total expenses
$3,355,940
2023
Total assets
$3,286,760
2023
Num. employees
22
2023

Program areas at Les Turner ALS Foundation

The Foundation currently makes grants to the Les Turner als center at northwestern medicine for als research, the lois insolia als clinic and other als educational and scientific activities. In addition, the Foundation provides personalized support visits, support groups, access to equipment and other program services to people with als and their families. The Foundation offers extensive educational resources to people with als and their families across the country and increases public awareness of the disease througheducational programs and initiatives.

Grants made by Les Turner ALS Foundation

GranteeGrant descriptionAmount
Northwestern UniversityResearch To Find A Cure$720,000
Northwestern Medical Faculty FoundationClinic for the Therapy of Als Patients$375,000
Northwestern UniversityEndowment for Als Research and Patient Center$100,000
...and 1 more grant made

Who funds Les Turner ALS Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Gilbert and Jacqueline R Fern FoundationCharitable$153,000
Foglia Family FoundationGeneral Charitable Purposes$100,000
James V Insolia FoundationMedical Research$65,000
...and 69 more grants received totalling $951,040

Personnel at Les Turner ALS Foundation

NameTitleCompensation
Laura FrevelettiChief Executive Officer$148,059
Constance PaeselChief Operations Officer, Director of Finance and Human Resources
Mark HeidenChief Communications Officer
Lauren WebbChief Advocacy and Outreach Officer$115,407
Steve SchapiroDirector of Development$123,000
...and 11 more key personnel

Financials for Les Turner ALS Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$3,233,758
Program services$0
Investment income and dividends$102,365
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-653,715
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$2,682,408

Form 990s for Les Turner ALS Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-07-26990View PDF
2022-122023-06-27990View PDF
2021-122022-08-24990View PDF
2020-122021-06-22990View PDF
2019-122020-08-14990View PDF
...and 11 more Form 990s
Data update history
August 25, 2024
Received grants
Identified 18 new grant, including a grant for $153,000 from Gilbert and Jacqueline R Fern Foundation
May 18, 2024
Received grants
Identified 5 new grant, including a grant for $35,788 from American Online Giving Foundation
March 24, 2024
Updated personnel
Identified 4 new personnel
January 3, 2024
Received grants
Identified 12 new grant, including a grant for $60,000 from Circle of Service Foundation
October 23, 2023
Received grants
Identified 11 new grant, including a grant for $50,000 from The Chicago Community Trust
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsPeer-to-peer fundraisingReceives government fundingEndowed supportGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
5550 W Touhy Ave 302
Skokie, IL 60077
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
County
Cook County, IL
Website URL
lesturnerals.org/ 
Phone
(847) 679-3311
Facebook page
LesTurnerALS 
Twitter profile
@lesturnerals 
IRS details
EIN
36-2916466
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1977
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0285768
FTB Entity ID
5271354
AB 488 data last updated ("as-of") date
2024-10-16
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