EIN 05-0577683

Lewy Body Dementia Association

IRS 501(c) type
501(c)(3)
Num. employees
22
State
Year formed
2003
Most recent tax filings
2022-12-01
Description
The Lewy Body Dementia Association supports those affected by Lewy body dementias through outreach, education, and research. LBDA provides information to caregivers, families, professionals, and the general public and encourages scientific advancements. Its programs include a national support group network.
Total revenues
$4,183,987
2022
Total expenses
$2,648,788
2022
Total assets
$7,321,282
2022
Num. employees
22
2022

Program areas at Lewy Body Dementia Association

Lewy Body Dementia Association, Inc. (lbda) provides information on Lewy Body dementias to caregivers, families, professionals, and the general public, and encourages scientific advancements. Lbda programs include a national support group network, extensive website and online communities, email and toll free telephone help lines, and information packets and brochures. Lbda representatives attend scientific conferences, host exhibits at national medical conferences, and support the lbda scientific advisory council. Through lbda's research centers of excellence grant program, lbda helps fund academic research centers delivering clinical care, outreach, and education of public and professionals.

Grants made by Lewy Body Dementia Association

GranteeGrant descriptionAmount
Mayo ClinicRcoe Coordinating Center Award$50,000
General Hospital CorporationRcoe Site Award$7,500
Rush University Medical CenterRcoe Site Award$7,500
...and 12 more grants made

Who funds Lewy Body Dementia Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Roderick J and Jo Anne Cyr FoundationGeneral Charitable Purposes$75,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$70,304
The William Gerald Willett Charitable FoundationTo Support Those Affected By Lewy Body Dementias Through Outreach, Education, and Research$50,000
...and 59 more grants received totalling $607,639

Personnel at Lewy Body Dementia Association

NameTitleCompensation
Allison FeldmanChief Executive Officer$107,374
Ian RichardVice President of Development$119,013
Julia WoodDirector of Professional and Community Education$100,968
Unique DiazAssistant To Administration
Keith FargoDirector of Scientific Initiatives
...and 14 more key personnel

Financials for Lewy Body Dementia Association

RevenuesFYE 12/2022
Total grants, contributions, etc.$4,151,470
Program services$0
Investment income and dividends$128,420
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-95,903
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$4,183,987

Form 990s for Lewy Body Dementia Association

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-09-08990View PDF
2020-122021-09-10990View PDF
2019-122022-03-08990View PDF
2018-122019-09-11990View PDF
...and 8 more Form 990s
Data update history
November 3, 2024
Updated personnel
Identified 4 new personnel
August 25, 2024
Received grants
Identified 16 new grant, including a grant for $75,000 from Roderick J and Jo Anne Cyr Foundation
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $5,000 from Maria Foundation / Michael E Markson Co-Ttee
January 15, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 15, 2024
Updated personnel
Identified 6 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthMental healthDiseases and disorders
Characteristics
Conducts researchTax deductible donationsAccepts online donations
General information
Address
912 Killian Hill Rd SW
Lilburn, GA 30047
Metro area
Atlanta-Sandy Springs-Alpharetta, GA
County
Gwinnett County, GA
Website URL
lbda.org/ 
Phone
(404) 935-6444
IRS details
EIN
05-0577683
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2003
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G40: Diseases of Specific Organs
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - In Process
FTB status revoked
Not revoked
AG Registration Number
120232
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2024-11-20
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