EIN 45-2284811

Li Fraumeni Syndrome Association

Name: Li Fraumeni Syndrome Association financials for 2022
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

Holliston

State

Massachusetts

Year formed

2012

Most recent tax filings

2022-12-01

NTEE code, primary

G20: Birth Defects and Genetic Diseases

Description

The Li Fraumeni Syndrome Association offers a wide range of information, advocacy, and support services for individuals and families affected by the syndrome. The association supports a consortium of researchers, medical providers, and caregivers to further research on the syndrome. Additionally, they organize fundraisers such as the Cow Pie Contest in Westfield, MA to support youth program events. In this fundraiser, participants can purchase squares on a gridded field for a chance to win as a cow is released into the field. The association is located in Holliston, MA.

Total revenues

2022

Total expenses

2022

Total assets

$380,416

2022

Num. employees

2020

Program areas at Li Fraumeni Syndrome Association

Li-fraumeni Syndrome Association, Inc. Provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medcial providers and caregivers to further research and promote opitam care for the lfs community.

Grants made by Li Fraumeni Syndrome Association

Grantee	Grant description	Grant year	Amount
Huntsman Cancer Foundation (HCF)	Supplemental Funding in Original Lsfa Grant Exploring P53 Therapy and Prevention	2016-12	$100,000
Dana-Farber Cancer Institute	Camper Scholarship for Children To Attend Summer Camp	2016-12	$20,000
the Hole in the Wall Gang Camp	Camper Scholarship for Children To Attend Summer Camp	2016-12	$5,500

Who funds Li Fraumeni Syndrome Association

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
Silicon Valley Community Foundation (SVCF)	2022-12	Health	$150,000
Fidelity Investments Charitable Gift Fund	2023-06	For Grant Recipient's Exempt Purposes	$16,000
Schwab Charitable Fund	2023-06	Health	$10,000
...and 2 more grants received

Personnel at Li Fraumeni Syndrome Association

Name	Title	Compensation	Date of data
Jennifer Perry	President	$0	2023-11-15
Michele Gionevelli	Past Treasurer		2021-11-12
Michelle Giovenelli	Treasurer	$0	2022-12-31
Sandi Barrett	Secretary	$0	2022-12-31
Holly Fraumeni	Vice President	$0	2022-12-31

Financials for Li Fraumeni Syndrome Association

Revenues	FYE 12/2022	FYE 12/2021	% Change
Total grants, contributions, etc.	$0	$163,195	-100%
Program services	$0	$0	-
Membership dues	$0	$0	-
Investment income and dividends	$0	$0	-
Net gain from sale of non-inventory assets	$0	$0	-
Net income from gaming activities and fundraising events, combined	$0	$-7,647	-100%
Net income from sales of inventory	$0	$0	-
Miscellaneous revenues	$0	$34	-100%
Total revenues	$0	$155,582	-100%

Form 990s for Li Fraumeni Syndrome Association

Fiscal year ending	Date received by IRS	Form	PDF link
2022-12	2023-11-15	990EZ	View PDF
2021-12	2022-11-15	990EZ	View PDF
2020-12	2021-11-12	990	View PDF
2019-12	2021-05-19	990EZ	View PDF
2018-12	2020-02-07	990	View PDF
...and 5 more Form 990s

Organizations like Li Fraumeni Syndrome Association

Organization	Type	Location	Revenue
Congenital Heart Defects Families Association	501(c)(3)	Kansas City, MO	$49,123
The Foundation for Faces of Children	501(c)(3)	Brookline, MA	$91,500
William E Proudford Sickle Cell Fund	501(c)(3)	Dover, DE	$31,223
Northwest Rett Syndrome Association	501(c)(3)	Seattle, WA	$17,856
Down Syndrome Association of Northwest Indiana	501(c)(3)	Schererville, IN	$163,111
Cystic Fibrosis Foundation Therapeutics (CFF)	501(c)(3)	Bethesda, MD	$0
Cystic Fibrosis Educational Services Corporation	501(c)(3)	Long Beach, NY	$116
Leaping Butterfly	501(c)(3)	Spring, TX	$19,622
New England Connection for Pku and Allied Disorders	501(c)(3)	Raynham, MA	$79,003
Mississippi Sickle Cell Foundation	501(c)(3)	Jackson, MS	$43,728

Data update history

January 8, 2024

Posted financials

Added Form 990EZ for fiscal year 2022

December 24, 2023

Received grants

Identified 2 new grant, including a grant for $150,000 from Silicon Valley Community Foundation (SVCF)

July 16, 2023

Posted financials

Added Form 990EZ for fiscal year 2021

July 1, 2023

Posted financials

Added Form 990 for fiscal year 2020

June 28, 2023

Updated personnel

Identified 5 new personnel

Nonprofit Types

Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities

Issues

HealthDiseases and disorders

Characteristics

Conducts researchPartially liquidatedTax deductible donationsNo full-time employeesAccepts online donations

General information

Address: PO Box 6458; Holliston, MA 01746
Metro area: Boston-Cambridge-Newton, MA-NH
County: Middlesex County, MA
Website URL: lfsassociation.org/
Phone: (774) 266-0503

IRS details

EIN: 45-2284811
Fiscal year end: December
Taxreturn type: Form 990-EZ
Year formed: 2012
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: G20: Birth Defects and Genetic Diseases
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Independent

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Li Fraumeni Syndrome Association

Program areas at Li Fraumeni Syndrome Association

Grants made by Li Fraumeni Syndrome Association

Who funds Li Fraumeni Syndrome Association

Personnel at Li Fraumeni Syndrome Association

Financials for Li Fraumeni Syndrome Association

Form 990s for Li Fraumeni Syndrome Association

Organizations like Li Fraumeni Syndrome Association

Nonprofits

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