Life Raft Group (LRG)

Research: we fund and manage uniquely coordinated research initiatives that always keep the needs of gist patients foremost. The Life Raft Group (lrg) continues to lead a collaborative team of world-renowned scientists and clinicians in gist. Lrg has the largest gist patient registry in the world. Our research paradigm is patient-powered science for Life. A comprehensive approach that compliments traditional research with real world evidence supported by data.

Information, education, advocacy, outreach & engagement: the lrg provides support, intervention, education and advocacy to gist patients, their families, and caregivers. Local support is available to the gist community through a network of lrg mentors and volunteers. Our education programs are offered worldwide. Our gist days of learning andour biennial Life fest event gather experts from across the globe to bring the most up to date information on gist research, emerging therapies and updates on the world of gist. Our outreach and engagement efforts also include patient support groups, focus groups, monthly webcasts, our website, access to our clinical trials database and our worldwide gist specialist database. Expert patient training is offered to all members.