Lobular Breast Cancer Alliance (LBCA)

During the fiscal year, Lbca:- managed website with over 42,000 visits that provides detailed information for the public about invasive Lobular Breast Cancer (ilc), ilc research, clinical trials and patient advocacy opportunities;- produced ilc awareness-raising videos and interviews of ilc researchers.- published ilc faqs and fact sheets in 15 languages, a "questions for doctor" guide for ilc patients, and a monthly e-newsletter with over 5,200 subscribers;- presented abstract poster of metastatic ilc patient survey results at sabcs22, the largest us Breast Cancer research symposium; - funded ilc research grants with the society of (cont'd in schedule o) nuclear medicine and molecular imaging and the american association for Cancer research;-created campaign with approx. 24 other nonprofit Cancer organizations to increase public awareness that Breast Cancer has subtypes;- hosted webinars for ilc patient advocates on research and other topics, and sponsored volunteer patient advocate attendance at Breast Cancer conferences;- sponsored scientific advisory board meetings to involve ilc researchers in advocacy and in the development of information Lbca disseminates;- sponsored patient advocate advisory board meetings to involve ilc patient advocates in ilc awareness raising activities and strategic planning;- developed and shared on website and social media lay summaries of all ilc posters presented at sabcs22, to make the research presented accessible to lay audiences;- developed survey of radiologists regarding ilc patient imaging with the society of Breast imagers;-furnished ilc-related information to the american Cancer society, breastcancer.org and other organizations to include in their educational content and activities; and-co-authored an abstract about how ilc is an overlooked subtype in clinical trials, published in the european society for medical oncology esmo open special issue.