Program areas at Lupus Foundation of America Wisconsin Chapter
The Lupus Foundation of America (lfa), Wisconsin Chapter funds local research grants and hosts lfa Lupus lectureships at Wisconsin's premier medical schools. Understanding Lupus is challenging and education is essential. Services include one-on-one peer counseling, managing support groups, hosting summits for Lupus ambassadors and leadership, and providing educational presentations in-person and virtually. Partnerships with donors and sponsors enable family support with communal outings, a patient assistance fund provides direct financial support for Lupus warriors for items and programs that increase their quality of life. The Chapter advocates for policies that benefit Lupus warriors on the local and national level. The Wisconsin Chapter is affiliated with the Lupus Foundation of America and nationally works to optimize clinical trials, fund medical research, unite the medical community by creating tools to share Lupus information, offer self-management programs and tools to manage Lupus, and more.
Who funds Lupus Foundation of America Wisconsin Chapter
Grants from foundations and other nonprofits
Personnel at Lupus Foundation of America Wisconsin Chapter
| Name | Title | Compensation | Date of data |
|---|
| Louise Vetter | President and Chief Executive Officer | | 2024-11-07 |
| Joan T. Merrill | Chief Advisor for Clinical Development | | 2024-11-07 |
| Mary T. Crimmings | Senior Vice President , Marketing and Communications | | 2024-11-07 |
| Mike Donnelly | Vice President , Communications | | 2024-11-07 |
| Patrick Wildman | Senior Vice President , Advocacy and Government Relations | | 2024-11-07 |
| ...and 5 more key personnel |
Financials for Lupus Foundation of America Wisconsin Chapter
| Revenues | FYE 09/2024 | FYE 09/2023 | % Change |
|---|
| Total grants, contributions, etc. | $223,628 | $298,755 | -25.1% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $11,260 | $15,241 | -26.1% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $-3,840 | $0 | -999% |
| Net income from fundraising events | $-38,053 | $-27,017 | -40.8% |
| Net income from gaming activities | $7,043 | $11,977 | -41.2% |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $9 | -100% |
| Total revenues | $200,038 | $298,965 | -33.1% |
Organizations like Lupus Foundation of America Wisconsin Chapter
| Organization | Type | Location | Revenue |
|---|
| Gateway Hemophilia Association | 501(c)(3) | Saint Louis, MO | $374,624 |
| Sickle Cell Disease Association of Illinois | 501(c)(3) | Chicago, IL | $299,918 |
| Kentucky Hemophilia Foundation | 501(c)(3) | Louisville, KY | $285,400 |
| Down Syndrome Association of West Michigan | 501(c)(3) | Grand Rapids, MI | $392,563 |
| Massachusetts Sickle Cell Association | 501(c)(3) | Boston, MA | $402,449 |
| The Northern Ohio Hemophilia Foundation | 501(c)(3) | Cleveland, OH | $904,148 |
| Down Syndrome Association of Central Florida | 501(c)(3) | Winter Park, FL | $639,623 |
| Down Syndrome Association of Central Kentucky | 501(c)(3) | Lexington, KY | $246,396 |
| Down Syndrome Alliance of the Midlands | 501(c)(3) | Omaha, NE | $569,042 |
| Down Syndrome Association of Pittsburgh | 501(c)(3) | Pittsburgh, PA | $346,189 |
Data update history
November 8, 2024
Updated personnel
Identified 27 new personnel
June 1, 2024
Posted financials
Added Form 990 for fiscal year 2023
June 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 19, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchFundraising eventsPeer-to-peer fundraisingState / local levelCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 2600 N Mayfair Rd 320
- Milwaukee, WI 53226
- Metro area
- Milwaukee-Waukesha, WI
- County
- Milwaukee County, WI
- Website URL
- lupus.org/wisconsinÂ
- Phone
- (414) 443-6400
IRS details
- EIN
- 39-1620195
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 1975
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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