Program areas at Lyme Disease Association
Education - the LDA's efforts are multi-pronged - providing free speakers for programs for various audiences: public, corporations, schools, government, health care providers, and radio interviews.LDA brochures are ordered through LDA website for shipping cost. Most LDA materials/articles are posted on website for free download/printing. LDA publishes a free monthly e-newsletter featuring articles on current research, news, links to resources & researcher funding opportunities/studies for public. LDA answers non-medical questions online & maintains a free tick-borne disease searchable nationwide doctor referral with about 800 medical providers/other professionals.This year's annual conference was held on zoom October 13-14: Lyme & Other Tick-Borne Diseases: Research & Clinical Advances 2023.
LA4K Grants: The Lyme Disease Association's LymeAid 4 Kids (LA4K)fund was started in conjunction with author Amy Tan. It has been in operation since 2004 and has distributed $456,000 for children all over the United States since. The fund is for children who do not have insurance coverage or do not receive reimbursement for Lyme disease treatment/diagnosis and whose families have economic difficulties. LDA's LymeAid 4 Kids fund gave 13 financially disadvantaged families grants in 2023.
Research, Education, Grants: Since 1992, LDA has provided 127 research grants including three 2023 grants.Research published in peer-reviewed journals helps move the field forward. To date there have been more than 60 journal publications from LDA funded research. From 1999 to 2023, LDA also awarded educational grants to other non-profits, hospitals, universities/other entities to provided educational programs, conferences, billboards, printed matter/other materials on Lyme/TBD.
Who funds Lyme Disease Association
Grants from foundations and other nonprofits
Personnel at Lyme Disease Association
| Name | Title | Compensation | Date of data |
|---|
| Patricia Smith | President | $0 | 2024-05-11 |
| Corey Lakin | Second Vice President | $0 | 2023-12-31 |
| Ruth Waddington | Secretary | $0 | 2023-12-31 |
| Richard Smith | Vice President and Treasurer | $0 | 2023-12-31 |
Financials for Lyme Disease Association
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $330,238 | $278,794 | 18.5% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $231 | $209 | 10.5% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $330,469 | $279,003 | 18.4% |
Organizations like Lyme Disease Association
| Organization | Type | Location | Revenue |
|---|
| National Center for Learning Disabilities | 501(c)(3) | Washington, DC | $1,255,350 |
| Acs Regional Committees on Trauma | 501(c)(3) | Chicago, IL | $821,400 |
| Schizophrenia & Psychosis Acti | 501(c)(3) | Alexandria, VA | $1,546,410 |
| Decoding Dyslexia MN | 501(c)(3) | Saint Paul, MN | $99,767 |
| National Pku Alliance | 501(c)(3) | New York, NY | $1,305,823 |
| PC Project | 501(c)(3) | Holladay, UT | $490,833 |
| contd Advocacy and Resource Ne | 501(c)(3) | Stanton, KY | $365,826 |
| Foundation for Ichthyosis and Related Skin Types (FIRST) | 501(c)(3) | Lansdale, PA | $734,946 |
| The Colton Underwood Legacy Foundation | 501(c)(3) | Aurora, CO | $248,870 |
| Lupus Foundation of America Philadelphia Tri-State Chapter | 501(c)(3) | King of Prussia, PA | $715,394 |
Data update history
July 11, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 22, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disordersAgriculture
Characteristics
Political advocacyConducts researchLobbyingNational levelTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- PO Box 1438
- Jackson, NJ 08527
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- Ocean County, NJ
- Website URL
- lymediseaseassociation.org/Â
- Phone
- (888) 366-6611
IRS details
- EIN
- 22-3123551
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1992
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- 073965
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-12-31
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