Program areas at Lyme Disease Biobank Foundation
The Lyme Disease Biobank, sponsored by Bay Area Lyme Foundation, collects and characterizes vital blood, urine and tissue samples for researchers. By collecting blood and urine from untreated patients with early-stage Lyme disease and patients with chronic disease as well as tissue samples from late-stage Lyme patients, this important program will help dramatically improve research efforts to accelerate medical breakthroughs in the understanding, diagnosis and treatment of Lyme disease and other tick-borne infections. The Lyme Disease Biobank is a collection of human biological samples that facilitates research of Lyme disease and other tick-borne infections. Currently, there are 84 research projects relying on Biobank samples. These projects are helping to pave the way for new diagnostics and therapeutics, as well as making strides to improve our understanding of Lyme and other tick-borne diseases and co-infections. The Lyme Disease Biobank is working with collection sites throughout the country. Through the end of 2022, more than 15,500 samples were shipped to researchers. We collected samples from 161 participants in 2022 bringing our total to 1,174 participants. Our persistent Lyme cohort now includes 135 participants. Additionally, Lyme Disease Biobank collaborates with the National Disease Research Interchange (NDRI) for the collection of surgical and post-mortem tissue samples, and partners with MyLymeData.org, a project of LymeDisease.org, to pair samples with clinical information that can further enhance research. In 2022, tissue was collected from 8 donors: 4 post-mortem donors including 1 tissue transfer from autopsy, and 4 surgeries. Since 2019, tissue has been collected from 12 post-mortem donors and 11 surgical donors.
Who funds Lyme Disease Biobank Foundation
Grants from foundations and other nonprofits
Personnel at Lyme Disease Biobank Foundation
Name | Title | Compensation | Date of data |
---|
Linda Giampa | Executive Director | $0 | 2023-05-16 |
Loring Weidner | Director of Marketing and Creative Services | | 2023-05-16 |
Nina Fairbairn | Research Grant Director | | 2023-05-16 |
Jo Ellis | Director of Education | | 2023-05-16 |
Katariina Tuovinen | Scientific Project Manager | | 2023-05-16 |
...and 3 more key personnel |
Financials for Lyme Disease Biobank Foundation
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $955,198 | $702,369 | 36% |
Program services | $59,701 | $35,487 | 68.2% |
Investment income and dividends | $0 | $0 | - |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $1,014,899 | $737,856 | 37.5% |
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Data update history
December 1, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 20, 2023
Posted financials
Added Form 990 for fiscal year 2020
May 16, 2023
Updated personnel
Identified 22 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disordersPublic policy
Characteristics
Conducts researchTax deductible donationsNo full-time employees
General information
- Address
- 5457 SW Shattuck Rd
- Portland, OR 97221
- Metro area
- Portland-Vancouver-Hillsboro, OR-WA
- County
- Multnomah County, OR
- Website URL
- bayarealyme.org/biobank/Â
- Phone
- (503) 863-4494
IRS details
- EIN
- 47-3975911
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2015
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Subordinate organization
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