Lymediseaseorg

Education - we are the largest and most trusted communications network for lyme disease in the nation. The organization raises the level of public awareness of lyme disease through our published blogs and the digital lyme times as well as the internet, and social media.

Advocacy - we strive for patient involvement at all levels of decision making. We represent hundreds of thousands of patientsand provide them with the tools essential to empowerment. For over 10 years, we have been involvedin patient-led big data research efforts, conducting large scale patient surveys that engage thousands of patients and are published in peer reviewed journals.

Research - we conduct and publish research through one of the largest studies of lyme disease through our patient registry and research platform,mylymedata, with over 13,000 patients enrolled to date. We cololaborate with researchers from the university of Washington and from ucla, as well as bay arealyme foundationbiobank on a tissue speciment biorepository.

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