Program areas at Lymelight Foundation
Lymelight Foundation provides medical grants up to $10,000 (cumulative) to lyme infected children and young adults who cannot pay for necessary medication and therapies. Grants funds cover doctor visits, medications, supplements, lab testing, alternative therapies and transportation to out of area physicians. In 2023, 254 total grants were awarded: 141 to new individuals and 113 to existing recipients. As most insurance companies do not cover the treatment of chronic lyme disease, families are typically left on their own to battle the disease, often incurring extreme medical debt. By providing critical treatment, Lymelight bridges the gap of enormous unmet need. Since its inception in 2011, Lymelight has awarded grants totaling $9,100,370 to 1,289 individuals in 49 states.
LymeLight Foundation continues to promote and utilize the video series called Patient Talk. LymeLight collaborated with other organizations to produce the series in 2017 where real patients tell their stories in addressing the practical, physical and emotional issues they faced when dealing with a life changing Lyme disease medical diagnosis. These educational medical videos detail the long and difficult journeys faced by those with Lyme disease. The videos also provide important information about diagnosis and treatment protocols. The video series has been extremely well received by both the Lyme community and by the broader audience of the general public. It has become a key educational tool.
Lymelight Foundation is dedicated to educating the public on the truth and misconceptions about identifying, contracting and fighting lyme disease. Lymelight Foundation hosts and participates in several lymeawareness and fundraising events including dart for art. Active supporters include singer-song writer avril lavigne and auxiliary and fundraising events in 28 states.
Who funds Lymelight Foundation
Grants from foundations and other nonprofits
Personnel at Lymelight Foundation
Name | Title | Compensation | Date of data |
---|
Phyllis Bedford | Founder and Executive Director | $0 | 2024-10-01 |
Nora Thomas | Board Member | $0 | 2024-10-01 |
Scott Bedford | Founder and Chairman of the Board | $0 | 2024-10-01 |
Nancy Rollett | Board Member - Former Executive Director | $46,873 | 2016-12-31 |
Financials for Lymelight Foundation
Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
---|
Total grants, contributions, etc. | $870,869 | $724,671 | 20.2% |
Program services | $0 | $0 | - |
Investment income and dividends | $10,407 | $1,897 | 448.6% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $1,972 | $0 | 999% |
Net income from fundraising events | $-61,403 | $204,531 | -130% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $349 | $0 | 999% |
Miscellaneous revenues | $0 | $627 | -100% |
Total revenues | $822,194 | $931,726 | -11.8% |
Organizations like Lymelight Foundation
Organization | Type | Location | Revenue |
---|
Angels Hands Foundation | 501(c)(3) | South Jordan, UT | $302,989 |
Parkinson Association of Southwest Florida | 501(c)(3) | Naples, FL | $543,939 |
Angel Fund | 501(c)(3) | Wakefield, MA | $702,162 |
The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
The Ronnie Sherrill Project | 501(c)(3) | Charlotte, NC | $597,277 |
Team Drea Foundation | 501(c)(3) | Raleigh, NC | $388,795 |
Therapies for Inherited Neuropathies | 501(c)(3) | Baltimore, MD | $232,876 |
The Woody Foundation | 501(c)(3) | Coral Gables, FL | $222,193 |
ALS Hope Foundation | 501(c)(3) | Philadelphia, PA | $695,297 |
Bike Box Project | 501(c)(3) | New Bern, NC | $420,080 |
Data update history
October 21, 2024
Posted financials
Added Form 990 for fiscal year 2023
April 29, 2024
Used new vendors
Identified 1 new vendor, including
February 4, 2024
Received grants
Identified 5 new grant, including a grant for $300,000 from Laurel Foundation Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disorders
Characteristics
Conducts researchFundraising eventsTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 1229 Burlingame Ave 205
- Burlingame, CA 94010
- Metro area
- San Francisco-Oakland-Berkeley, CA
- County
- San Mateo County, CA
- Website URL
- lymelightfoundation.org/Â
- Phone
- (650) 348-5509
IRS details
- EIN
- 61-1645660
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2011
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0179713
- FTB Entity ID
- 3366214
- AB 488 data last updated ("as-of") date
- 2024-12-31
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