Program areas at Lymphangiomatosis and Gorhams Disease Alliance
Our outreach program increases the awareness of cla's through our website and social media including events such as awareness day and rare Disease day. This also supported the distribution of learning videos from our conference for those individuals that could not attend including a special introduction talks about cla's.
Our research program includes $35,000 to fund research grants from the university of pennsylania/ the million dollary bike ride to study support complex lymphatic anomlies ($35,000). Two award receiptients were selected. We also support two young investigator awards to research projects specific to cla ($25,000).
Our patient support services included the management of our patient registry to support research needs and track vital information about clas. The programs also supports the management of several support groups.
Grants made by Lymphangiomatosis and Gorhams Disease Alliance
Who funds Lymphangiomatosis and Gorhams Disease Alliance
Grants from foundations and other nonprofits
Personnel at Lymphangiomatosis and Gorhams Disease Alliance
| Name | Title | Compensation | Date of data |
|---|
| Michael Kelly | Executive Director | $57,038 | 2023-10-27 |
| Louise Murgia | Director of Operations | $47,216 | 2023-06-30 |
| Scott Weisner | President | $0 | 2023-06-30 |
| Jack Kelly | President and Acting Secretary | $0 | 2021-04-13 |
Financials for Lymphangiomatosis and Gorhams Disease Alliance
| Revenues | FYE 06/2023 | FYE 06/2022 | % Change |
|---|
| Total grants, contributions, etc. | $118,418 | $320,875 | -63.1% |
| Program services | $0 | $0 | - |
| Membership dues | $0 | $0 | - |
| Investment income and dividends | $2,845 | $843 | 237.5% |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from gaming activities and fundraising events, combined | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $140 | $0 | 999% |
| Total revenues | $121,403 | $321,718 | -62.3% |
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Data update history
December 31, 2023
Posted financials
Added Form 990EZ for fiscal year 2023
December 30, 2023
Updated personnel
Identified 1 new personnel
July 7, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 26, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersProfessional associationsDisease-focused nonprofitsCharities
Issues
HealthMedical disciplines
Characteristics
Conducts researchPartially liquidatedTax deductible donationsNo full-time employees
General information
- Address
- 7901 4th St North
- Saint Petersburg, FL 33702
- Metro area
- Tampa-St. Petersburg-Clearwater, FL
- County
- Pinellas County, FL
- Phone
- (262) 227-8453
IRS details
- EIN
- 26-1224181
- Fiscal year end
- June
- Taxreturn type
- Form 990-EZ
- Year formed
- 2007
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G90: Medical Disciplines
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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