EIN 58-2404527

Lymphatic Education and Research Network (LE&RN)

IRS 501(c) type
501(c)(3)
Num. employees
10
Year formed
1998
Most recent tax filings
2023-12-01
Description
Lymphatic Education and Research Network fights lymphatic disease and lymphedema by educating, researching, and advocating. The organization aims to accelerate the prevention, treatment, and cure of lymphatic diseases while bringing patients and medical professionals together. In 2022, LE&RN expanded its programs to meet the fight against lymphatic disease through education, research, and advocacy. This includes the continuation of the International Lymphedema Patient Registry and Biorepository.
Also known as...
Lymphatic Research Foundation
Total revenues
$1,476,365
2023
Total expenses
$1,736,198
2023
Total assets
$3,828,174
2023
Num. employees
10
2023

Program areas at LE&RN

Some activities of the organization during 2023 included the following: LE&RN continued to expand programs to meet the goals of the expanded mission of fighting lymphatic disease through education, research, and advocacy. LE&RN continued the International Lymphatic Disease and Lymphedema Registry, a national patient registry, to stimulate research and support clinical trials and drug development. LE&RN continued the International Lymphatic Disease and Lymphedema Biorepository, providing biological materials to serve as a source for the clinical and laboratory study of lymphatic diseases, and began sharing data with worldwide databases. LE&RN continued its grant program that allows young investigators to attend a conference focused on lymphatic research. LE&RN continued its educational and awareness outreach programs targeting academia, government, industry, and the medical and patient communities. LE&RN continued its monthly virtual symposium series, which brings the world's foremost authorities in lymphatic disease and lymphedema to patients, their families, and professionals. LE&RN updated its website and provided daily social media posts and monthly newsletters featuring significant events in the field. LE&RN produced six issues of Lymphatic Research and Biology, an international, peer-reviewedbiomedical journal providing a forum for the exchange of cutting-edge scientific developments in lymphatic science and medicine. LE&RN secured ongoing support from the Congressional and National Institutes of Health for lymphatic research. LE&RN continued the LE&RN/LymphNotes Lymphedema Scholarship Program to provide tuition support to therapists seeking certification in lymphedema therapy LE&RN continued a web-based "Ask the Experts" feature that allows patients, their families, and professionals to ask the most prominent authorities in the field questions directly. LE&RN spokesperson and Academy Award Winner Kathy Bates appeared in print and television media to support research. LE&RN grew its Honorary Board, headed by Kathy Bates and including notable celebrities who support LE&RN's mission. LE&RN's Virtual Expo was expanded to better serve patients and therapists. LE&RN and NAVBO prepared a biennial Virtual Lymphatic Forum for researchers LE&RN developed new chapters in several states and countries. LE&RN continued to lead global events related to its having established World Lymphedema Day on March 6, 2016. LE&RN hosted a National Action Week supporting the creation of a National Commission on Lymphatic Diseases. LE&RN supported and grew its program, creating the first-ever Centers of Excellence in the Diagnosis & Treatment of Lymphatic Diseases. LE&RN, in collaboration with Stanford University, hosted the annual virtual State-of-the-Art Summit in Lymphatic Research & Medicine. LE&RN promoted its authored New York State bill that mandates hospital institutions to provide lymphedema materials to all at-risk patients. LE&RN promoted its PSA video featuring National Spokesperson Kathy Bates, hosted on the Centers for Disease Control and Prevention (CDC) cancer-related websites. LE&RN continued its cancer-related lymphedema campaign funded by a grant from the CDC Chronic Disease Awareness Grants program. Stavros Niarchos Foundation continued its LE&RN grant to fund its Centers of Excellence program. LE&RN succeeded in its efforts to have the Congressionally Directed Medical Research Program (CDMRP) include lymphedema and lymphatic diseases as categories in the Department of Defense's Peer Reviewed Medical Research Program (PRMRP). LE&RN succeeded in its efforts to have Congress request that the National Institutes of Health (NIH) establish a National Commission on Lymphatic Diseases. LE&RN established a global Patient Resource Center. LE&RN expanded and updated its Global Patient Registry. LE&RN created the CDC's first National Indicator Report on Cancer-Related lymphedema. LE&RN successfully advocated for a Program Manager in Lymphatics at the Advanced Research Agency for Health (ARPA-H) LE&RN created a "Gaps in Lymphatic Research" document in concert with the research community, distributed to NIH, CDC, ARPA-H, CDMRP, NNLBI, and NIAID.

Who funds Lymphatic Education and Research Network (LE&RN)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Spring FoundationOrganizational Support$100,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$11,141
National Philanthropic TrustHealth$10,000
...and 10 more grants received

Personnel at LE&RN

NameTitleCompensation
William RepicciPresident and Chief Executive Officer$272,415
Dave McDowellChairperson$0
Phillip BraginskySecretary / Chairman$0
Kenneth R CeriniTreasurer$0

Financials for LE&RN

RevenuesFYE 12/2023
Total grants, contributions, etc.$1,391,048
Program services$0
Investment income and dividends$48,778
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$36,539
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$1,476,365

Form 990s for LE&RN

Fiscal year endingDate received by IRSFormPDF link
2023-122024-04-23990View PDF
2022-122023-05-31990View PDF
2021-122022-03-25990View PDF
2020-122021-05-26990View PDF
2019-122020-09-01990View PDF
...and 9 more Form 990s
Data update history
May 24, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $7,966 from American Online Giving Foundation
December 31, 2023
Received grants
Identified 3 new grant, including a grant for $10,000 from Greater Houston Community Foundation
August 11, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 3, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsHeadquarter / parent organizationsCharities
Issues
Health
Characteristics
Conducts researchLobbyingFundraising eventsNational levelReceives government fundingProvides scholarshipsTax deductible donationsAccepts online donations
General information
Address
154 W 14th St 2nd Floor
New York, NY 10011
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
lymphaticnetwork.org/ 
Phone
(516) 625-9675
IRS details
EIN
58-2404527
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1998
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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