Program areas at Lysosomal and Rare Disorders Research and Treatment Center
Treatment & clinical care: in ldrtc's clinic, ldrtc offers extensive medical genetic evaluations for complex medical problems of unknown etiology and that do not fit a particular disease pattern. Case studies involving individualized therapy, institutional collaborations and individual bench science projects were successful during the past year.
Education: education is focused around patient meetings, workshops, lecture series, conferences, symposiums and internships. Ldrtc holds various workshops designed to provide opportunities for its attendees to collaborate and promote discussions on all aspects of Lysosomal biology.
Research: ldrtc aims to bridge the gap between basic and clinical Research to facilitate the diagnosis, Treatment, and management of Rare Disorders. Ldrtc presents a unique translational Research model focusing on a multidisciplinary approach to study the disease pathology, while applying cellular, molecular, and immunologic concepts to pathways amenable to therapeutic modulation.
Personnel at Lysosomal and Rare Disorders Research and Treatment Center
| Name | Title | Compensation | Date of data |
|---|
| Uyensa Beese | Treasurer | $66,738 | 2024-02-06 |
| Lauren Noll | Clinical Research Site Manager | | 2024-06-17 |
| Ozlem Goker-Alpan, M.D. | President | $296,653 | 2023-12-10 |
| Renuka Limgala | Secretary | $0 | 2022-12-31 |
| Ozlem Goker Alpan | Founder | $498,753 | 2020-12-31 |
Financials for Lysosomal and Rare Disorders Research and Treatment Center
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $491,100 | $484,468 | 1.4% |
| Program services | $2,860,290 | $2,535,683 | 12.8% |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $3,351,390 | $3,020,151 | 11% |
Organizations like Lysosomal and Rare Disorders Research and Treatment Center
| Organization | Type | Location | Revenue |
|---|
| Ecdysis Foundation | 501(c)(3) | Estelline, SD | $2,611,520 |
| Saint Paul VI Institute for the Study of Human Reproduction | 501(c)(3) | Omaha, NE | $2,457,723 |
| Diabetes Research Connection | 501(c)(3) | Del Mar, CA | $1,568,972 |
| PCD Foundation | 501(c)(3) | Bloomington, MN | $895,288 |
| Texas Medical Association Foundation | 501(c)(3) | Austin, TX | $1,314,959 |
| The Foundation To Advance Vascular Cures | 501(c)(3) | Redwood City, CA | $1,610,194 |
| Organization for Autism Research | 501(c)(3) | Arlington, VA | $2,819,297 |
| Making Headway Foundation | 501(c)(3) | Chappaqua, NY | $1,058,116 |
| The Honorable Tina Brozman Fdtn | 501(c)(3) | New York, NY | $2,889,411 |
| Center for Veterans Research and Education | 501(c)(3) | Minneapolis, MN | $8,291,707 |
Data update history
June 17, 2024
Updated personnel
Identified 1 new personnel
June 5, 2024
Posted financials
Added Form 990 for fiscal year 2022
June 4, 2024
Posted financials
Added Form 990 for fiscal year 2021
May 20, 2024
Used new vendors
Identified 2 new vendors, including , and
December 10, 2023
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Conducts researchPartially liquidatedTax deductible donationsAccepts online donations
General information
- Address
- 3702 Pender Dr 170
- Fairfax, VA 22030
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- Fairfax County, VA
- Website URL
- lysosomalcenter.org/index.php/pages/teamÂ
- Phone
- (703) 261-6220
IRS details
- EIN
- 45-5312680
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2012
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H00: Medical Research: General
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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