EIN 27-3025707

Macular Degeneration Association

IRS 501(c) type
501(c)(3)
Num. employees
7
State
Year formed
2010
Most recent tax filings
2023-12-01
Description
The Macular Degeneration Association disseminates research findings and conducts educational programs to cure macular degeneration. It has created a state of the art website with numerous resources for affected individuals, while also offering both in-person and virtual educational programs.
Total revenues
$3,698,303
2023
Total expenses
$2,434,742
2023
Total assets
$5,908,615
2023
Num. employees
7
2023

Program areas at Macular Degeneration Association

The Macular Degeneration Association (MDA) created informative and necessary educational programs for those affected by macular degeneration and diabetic macular edema. These programs not only provide information for the person who has been affected by either of these eye diseases but will bring precautionary measures to their family members and helpful information for their caregivers. All programs feature experts in the field of retina, providing information about risk factors, genetic predisposition, proper diagnosis, new treatment options, research information, clinical trials and new drug advances. Participants are given a chance to interact with the doctor and ask questions. They are also able to share their challenges and successes with the other attendees.
Macular Degeneration Association has created a state-of-the-art website to provide an extensive number of resources and information to help those affected by macular degeneration and additional diseases that can affect macular degeneration. This website includes educational videos that are produced for patients, family members and caregivers. The website is ADA-compliant and is accessible to people with vision disabilities. There is also a feature for those who speak Spanish to convert English to Spanish. We continue to include up-to-date information on all eye diseases, new treatment options, research information, clinical trials and new drug advances. Our user-friendly website provides the user with friendly navigation, accessibility tools and information for patients, professionals, caregivers and families. This website has an average of 600,000 hits annually.
The Macular Degeneration Association produces newsletters quarterly. The information provided is for those who have age-related macular degeneration, diabetic eye disease, glaucoma and cataracts. The newsletter provides educational information, new research, new drug therapies, clinical trials and treatments. The newsletters go out to 48,600 doctors, patients, families and caregivers. Brochures were designed and provided to doctors to help their patients navigate macular degeneration and find resources that can help. We have a very robust social media following including 17,111 followers on Facebook, 6,602 on Twitter, 4,800 on Linked In and 361 on Pinterest.

Who funds Macular Degeneration Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$53,959
The Howard Johnson FoundationUnrestricted General$50,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$32,739
...and 53 more grants received totalling $240,827

Personnel at Macular Degeneration Association

NameTitleCompensation
Donna AugerExecutive Director$144,000
Dustin TenneyCommunications Director$81,146
Lynne HenryDonor Relations Director
Jeffry D. Gerson, OD, FAAOMedical Director
Lawrence HoffheimerChairman and Founder$178,890
...and 2 more key personnel

Financials for Macular Degeneration Association

RevenuesFYE 12/2023
Total grants, contributions, etc.$3,224,423
Program services$0
Investment income and dividends$137,878
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$336,002
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$3,698,303

Form 990s for Macular Degeneration Association

Fiscal year endingDate received by IRSFormPDF link
2023-122024-04-19990View PDF
2022-122023-05-16990View PDF
2021-122022-03-14990View PDF
2020-122021-05-20990View PDF
2019-122021-01-21990View PDF
...and 9 more Form 990s
Data update history
August 26, 2024
Received grants
Identified 14 new grant, including a grant for $10,000 from Gerald and Roberta Franklin Charitable Foundation
May 22, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $50,000 from The Howard Johnson Foundation
January 2, 2024
Received grants
Identified 5 new grant, including a grant for $10,000 from Ruby Family Foundation
October 25, 2023
Received grants
Identified 2 new grant, including a grant for $10,000 from Gerald and Roberta Franklin Charitable Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchNational levelTax deductible donationsAccepts online donations
General information
Address
5969 Cattleridge Blvd Ste 100
Sarasota, FL 34232
Metro area
North Port-Sarasota-Bradenton, FL
County
Sarasota County, FL
Website URL
macularhope.org/ 
Phone
(941) 870-4399
IRS details
EIN
27-3025707
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2010
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G40: Diseases of Specific Organs
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0182507
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2024-10-16
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