Program areas at Massachusetts Sickle Cell Association
The annual walk is part of Sickle celebration in the park which offers individuals and teams a chance to honor and remember loved ones. The day features free health screening, free food, and live performances.
Hosted annual christmas party for children with Sickle Cell disease and their siblinsgs. Each child was given a gift donated by local companies.
The red ribbon gala recongnizes those who have been strong advocates in the fight against sickel Cell disease and the persentation of scholarship awards to two deserving students who are living with Sickle Cell disease and are currently in high school or attending a college of tehir choice.
General services provided to members such as support groups, and emergency funds to help members.
Who funds Massachusetts Sickle Cell Association
Grants from foundations and other nonprofits
Personnel at Massachusetts Sickle Cell Association
| Name | Title | Compensation | Date of data |
|---|
| Jacqueline Haley | Executive Director | $46,500 | 2023-11-15 |
| Maureen Okam | Director | $0 | 2022-12-31 |
Financials for Massachusetts Sickle Cell Association
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $402,449 | $53,945 | 646% |
| Program services | $0 | $0 | - |
| Membership dues | $0 | $0 | - |
| Investment income and dividends | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from gaming activities and fundraising events, combined | $0 | $66,233 | -100% |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $402,449 | $120,178 | 234.9% |
Organizations like Massachusetts Sickle Cell Association
| Organization | Type | Location | Revenue |
|---|
| Great Lakes Hemophilia Foundation | 501(c)(3) | Milwaukee, WI | $1,557,533 |
| Sickle Cell Disease Association of Illinois | 501(c)(3) | Chicago, IL | $299,918 |
| Kentucky Hemophilia Foundation | 501(c)(3) | Louisville, KY | $285,400 |
| Rio Grande Down Syndrome Network | 501(c)(3) | Albuquerque, NM | $221,960 |
| Bleeding Disorders Association of Northeastern NY | 501(c)(3) | Troy, NY | $108,536 |
| Hemophilia of Indiana | 501(c)(3) | Indianapolis, IN | $1,184,923 |
| The Hemophilia Association of San Diego County | 501(c)(3) | San Diego, CA | $277,450 |
| Sickle Cell Association of South Louisiana | 501(c)(3) | Baton Rouge, LA | $328,701 |
| DSNetwork | 501(c)(3) | Tempe, AZ | $263,264 |
| South Central Pennsylvania Sickle Cell Council | 501(c)(3) | Harrisburg, PA | $122,589 |
Data update history
January 19, 2024
Posted financials
Added Form 990EZ for fiscal year 2022
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,201 from Pfizer Foundation November 25, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
June 30, 2023
Posted financials
Added Form 990EZ for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Political advocacyConducts researchPartially liquidatedFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 1803 Dorchester Ave
- Boston, MA 02124
- Metro area
- Boston-Cambridge-Newton, MA-NH
- County
- Suffolk County, MA
- Website URL
- sicklecellhope.org/
- Phone
- (617) 825-4595
IRS details
- EIN
- 04-3524260
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2002
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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