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EIN 30-0215842

Melorheostosis Association

IRS 501(c) type
501(c)(3)
Num. employees
Unknown
City
New York
State
New York
Year formed
2003
Most recent tax filings
2023-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Melorheostosis Association strives to promote awareness of melorheostosis and its treatment while providing support for patients and their families. The organization hosts patient social calls and regularly communicates with researchers to advance its research mission. Its programs include NORD membership, which allows them to participate in advancing the position of rare diseases. They also connect patients with others, medical professionals, and research groups.
Total revenues
$25,752
2023
Total expenses
$29,748
2023
Total assets
$59,896
2023
Num. employees
n/a

Who funds Melorheostosis Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
AmazonSmile FoundationGeneral Support$227

Personnel at Melorheostosis Association

NameTitleCompensation
Katrina WellsTreasurer$0
Jennifer GordyPresident$0
Joanne ChapmanDirector$0

Financials for Melorheostosis Association

RevenuesFYE 12/2023
Total grants, contributions, etc.$25,749
Program services$0
Membership dues$0
Investment income and dividends$3
Net gain from sale of non-inventory assets$0
Net income from gaming activities and fundraising events, combined$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$25,752

Form 990s for Melorheostosis Association

Fiscal year endingDate received by IRSFormPDF link
2023-122024-04-16990EZView PDF
2022-122023-04-17990EZView PDF
2021-122022-04-19990EZView PDF
2020-122021-07-21990EZView PDF
2018-122019-06-19990EZView PDF
...and 8 more Form 990s
Data update history
June 22, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
June 17, 2023
Posted financials
Added Form 990EZ for fiscal year 2022
April 5, 2022
Received grants
Identified 1 new grant, including a grant for $2,500 from Norwood Foundation
October 10, 2021
Posted financials
Added Form 990EZ for fiscal year 2020
September 30, 2021
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchNational levelTax deductible donationsNo full-time employees
General information
Address
410 E 50th St
New York, NY 10022
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
melorheostosis.com/ 
Phone
(917) 885-3832
IRS details
EIN
30-0215842
Fiscal year end
December
Taxreturn type
Form 990-EZ
Year formed
2003
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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