EIN 55-0899427

MitoAction

IRS 501(c) type
501(c)(3)
Num. employees
3
City
Year formed
2005
Most recent tax filings
2022-12-01
Description
MitoAction strives to improve the quality of life for individuals and families affected by mitochondrial disease through advocacy, education, support and empowerment initiatives. They have partnered with three US camps in the SeriousFun Camp Network to make summer camp accessible for all children with mitochondrial disease. MitoAction also offers patient and family support, providing practical resources at no cost to those affected by the disease. They aim to help patients and families deal with the diagnosis of mitochondrial disease. MitoAction is located in Novi, MI.
Total revenues
$415,000
2022
Total expenses
$478,829
2022
Total assets
$804,636
2022
Num. employees
3
2022

Program areas at MitoAction

Outreach and education programs which improve the patient or family's understanding of mitochondrial disease and whcih educate both the general and the medical community, improve the patient's quality of life and empower the patient / parent to be an advocate in their case. Mitoaction's initiatives in this area include an awareness walk, free educational dvd's and school advocacy resources, weekly support groups, monthly educational lecture series.
Mitoaction has created special partnerships with three us camps as part of our mission to make summer camp a possibility for every child who suffers from mitochondrial disease. Each of these camps is part of the nationally accredited seriousfun camp network, and offers a safe, medically supervised program that allows mito kids to be free and safe, meet new friedns, have fun, forget about their tubes and meds, and "just be kids". Through our partnerships, these camps are well-equipped to shape a program for our mito kids by understanding the unique challenges of mitochonrial disease. The matthew harty camp fund helps ensure these kids and families can have this incredible camp experience completely free of charge.
Patient & family suppport - Mitoaction strives to offer support & practical resources at no cost to every individual or caregiver affected by mitochondrial disease. These initiatives help patients and families deal with diagnosis of mitochondrial disease today and offer assistance in navigating the medical system, school, community or workplace. Mitoaction's resources include "mito 411" a toll-free peer support hotline; monthly international teleconferences, family socials and support groups; access to expert information via web and teleconferencing, podcasts and videos, dedicated online support tools and forums for parents, teens and adults in order to reduce isolation and fear of living with the disease.

Who funds MitoAction

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Hough FoundationMedical Research$25,000
California Community FoundationHealth$20,000
American Online Giving FoundationGeneral Support$10,858
...and 2 more grants received

Personnel at MitoAction

NameTitleCompensation
Kira MannChief Executive Officer$99,988
Cristy BalcellsExecutive Director$90,000
Patricia CappucciPast Treasurer$6,000

Financials for MitoAction

RevenuesFYE 12/2022
Total grants, contributions, etc.$284,894
Program services$0
Investment income and dividends$21,616
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$108,490
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$415,000

Form 990s for MitoAction

Fiscal year endingDate received by IRSFormPDF link
2022-122023-10-20990View PDF
2021-122022-09-30990View PDF
2020-122021-09-27990View PDF
2019-122021-02-22990View PDF
2018-122020-01-03990View PDF
...and 9 more Form 990s
Data update history
December 5, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 27, 2023
Posted financials
Added Form 990 for fiscal year 2020
June 27, 2023
Received grants
Identified 3 new grant, including a grant for $20,000 from California Community Foundation
May 15, 2023
Received grants
Identified 2 new grant, including a grant for $559,063 from Dechomai Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersCampsDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchFundraising eventsProvides scholarshipsTax deductible donations
General information
Address
PO Box 310
Novi, MI 48376
Metro area
Detroit-Warren-Dearborn, MI
County
Oakland County, MI
Website URL
mitoaction.org/ 
Phone
(888) 648-6228
IRS details
EIN
55-0899427
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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