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EIN 13-3753992

Moebius Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
3
City
Denver
State
Colorado
Year formed
1994
Most recent tax filings
2023-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Moebius Syndrome Foundation provides information and support to individuals with Moebius syndrome and their families, promotes greater awareness and understanding of the condition, and advocates for scientific research to advance the diagnosis and treatment of Moebius syndrome. The foundation achieves this through its primary means of a newsletter and biannual conference. Its mission is focused on the advancement of research in scientific diagnosis and treatment.
Total revenues
$458,300
2023
Total expenses
$599,259
2023
Total assets
$1,833,572
2023
Num. employees
3
2023

Program areas at Moebius Syndrome Foundation

Provide information and support to individuals with Moebius syndrome and their families. The newsletter and biannual conference are the primary means of accomplishing this goal.
To provide college scholarships to students with Moebius Syndrome.
Advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

Grants made by Moebius Syndrome Foundation

GranteeGrant descriptionAmount
Indiana UniversityFor Scientific And/or Clinical Research on Moebius Syndrome$70,000
The George Washington University (GWU)Scholarship$3,000
University of Hartford (UHart)Scholarship$3,000
...and 1 more grant made

Who funds Moebius Syndrome Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$9,851
The Bank of America Charitable FoundationProgram/operating Support$5,000
Jablon Family Foundation CorporationGrant To People With Disabilities$2,000
...and 2 more grants received

Personnel at Moebius Syndrome Foundation

NameTitleCompensation
Jenny WhitmanExecutive Director
Jennifer WhitmanPast Executive Director$83,350
Jacob LichtPresident$0
Vicki McCarrellTreasurer$0
Rebecca MaherSecretary$0
...and 4 more key personnel

Financials for Moebius Syndrome Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$322,045
Program services$66,366
Investment income and dividends$68,250
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$1,639
Total revenues$458,300

Form 990s for Moebius Syndrome Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-05-07990View PDF
2022-122023-08-03990View PDF
2021-122022-08-02990View PDF
2020-122021-11-10990View PDF
2019-122021-01-21990View PDF
...and 10 more Form 990s
Data update history
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,681 from AmazonSmile Foundation
October 14, 2023
Updated personnel
Identified 3 new personnel
October 9, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 9, 2023
Updated personnel
Identified 1 new personnel
September 28, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchNational levelTax deductible donationsAccepts online donations
General information
Address
1312 17th St 976
Denver, CO 80202
Metro area
Denver-Aurora-Lakewood, CO
County
Denver County, CO
Website URL
moebiussyndrome.org/ 
Phone
(240) 421-9755
IRS details
EIN
13-3753992
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1994
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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