EIN 27-1618835

Movement Disorders Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2018
Most recent tax filings
2023-12-01
Description
MDF collaborates with researchers and care providers to help people with movement disorders and operates a Huntington's Disease clinic.
Also known as...
Projectspark Foundation; Projectspark Foundation
Total revenues
$147,641
2023
Total expenses
$108,398
2023
Total assets
$664,057
2023
Num. employees
0
2023

Program areas at Movement Disorders Foundation

Research projects funded by the Movement Disorders Foundation GRANT FUNDING program must have a clear possibility of working at scale and for which grant funding has been otherwise difficult to obtain. In 2023, the organization restructured its grant funding program to support early-career research scientists in their advancement of high risk/high reward translational and/or clinical research that advances the understanding, treatment or prevention of multiple movement disorders. Subsequently, the organization did not award any grants in 2023. The new Young Investigator Pilot Grant program formally launched in February 2024 with an invitational request for proposals to research institutions in the United States, Canada and United Kingdom.
Movement Disorders Foundation hosted its annual Huntington's Disease FAMILY EDUCATION DAY symposium in October 2023. The event was held in person and later streamed to a combined audience of over 60 participants.
Movement Disorder Foundation's HUNTINGTON'S DISEASE (HD) CLINIC provides an elite team approach to HD care and research. Patients benefit from expert neurologists, psychiatrists, social workers, therapists, counselors and other professionals who have extensive experience working with families affected by the disease and who work collaboratively to help families plan the best HD care program throughout the course of the disease. With the Huntington's Disease Society of America (HDSA), Movement Disorders Foundation helps fund and administers the Center of Excellence at the Rocky Mountain Movement Disorders Center, a comprehensive clinic where patients can visit with genetic counselors, psychologists, therapists and providers - at no charge. The Center of Excellence distinction is conferred on clinics who share HDSA's commitment to high-quality, comprehensive care and access to clinical research.
Movement Disorders Foundation's ENEWSLETTER provides important news, information and resources each Thursday for individuals living with movement disorders and their care partners. Now in its second year, the MDF eNewsletter reaches over 3000 people each week with more than 1600 active readers.

Grants made by Movement Disorders Foundation

GranteeGrant descriptionAmount
University of Denver (DU)Research Funding for Neurodegenerative Disorders.$55,000

Who funds Movement Disorders Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Huntington's Disease Society of America (HDSA)Community Services$41,000
Colorado Gives FoundationGeneral Purpose$17,776
National Philanthropic TrustHealth$10,000

Personnel at Movement Disorders Foundation

NameTitleCompensation
Eugene H SobczakExecutive Director$57,000
Leah H Hirsch-BobbittPast Executive Director / Key Employee$64,800
Betty RossChairperson of the Board$0
Morris SusmanTreasurer$0
Elizabeth MathiesChairperson of Board / Chairperson / Board Member$0
...and 1 more key personnel

Financials for Movement Disorders Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$116,078
Program services$0
Investment income and dividends$30,650
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$913
Total revenues$147,641

Form 990s for Movement Disorders Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-06-22990View PDF
2022-122023-11-09990View PDF
2021-122022-05-20990View PDF
2020-122021-11-12990View PDF
2019-122020-08-11990EZView PDF
...and 5 more Form 990s
Data update history
January 2, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 2, 2024
Updated personnel
Identified 1 new personnel
December 24, 2023
Received grants
Identified 2 new grant, including a grant for $41,000 from Huntington's Disease Society of America (HDSA)
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 30, 2023
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
701 E Hampden Ave Ste 510
Englewood, CO 80113
Metro area
Denver-Aurora-Lakewood, CO
County
Arapahoe County, CO
Website URL
movementdisordersfoundation.org/ 
Phone
(303) 588-3496
IRS details
EIN
27-1618835
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2018
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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