EIN 06-1504413

Multiple Myeloma Research Foundation (MMRF)

IRS 501(c) type
501(c)(3)
Num. employees
78
Year formed
1998
Most recent tax filings
2023-12-01
NTEE code, primary
Description
The mission of the MMRF is to relentlessly pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.
Total revenues
$33,950,590
2023
Total expenses
$41,890,829
2023
Total assets
$80,227,632
2023
Num. employees
78
2023

Program areas at MMRF

The mmrc is a network of 14 leading cancer centers and addresses three critical areas of unmet needs: high-risk smoldering Myeloma, high-risk upfront treatment for symptomatic Multiple Myeloma, and relapsed/refractory treatment after anti-cd38 and bcma-directed therapies.in 2023, The mmrf developed The horizon adaptive trials program. Slated to open in 2024, horizon will test treatment strategies through two trials in patients with relapsed/refractory disease and those who are newly diagnosed and have high-risk disease. The adaptive nature of The trials allows investigators to test Multiple therapies simultaneously and reduce The amount of time needed to evaluate new therapies. Investigators can then rapidly expand patient cohorts receiving treatment regimens with positive outcomes and efficiently close experimental protocols with less-than-optimal outcomes. Groundbreaking clinical trials like horizon are only possible through larger-scale, multi-institutional cooperation. These trials allow The mmrc to explore combination therapies regardless of manufacturer, putting The most promising science and The urgent need of patients ahead of pharmaceutical profits or industry competition.
In 2023, The mmrf concluded enrollment in The mmrf curecloud ("curecloud") Research initiative, making it one of The largest longitudinal data sets in Multiple Myeloma, with over 1,000 patients enrolled. The data from this study, which includes clinical genomic, immune, and patient-reported outcomes, is being analyzed in ongoing Research and will be made available to researchers to help answer important Myeloma Research questions and inform future mmrf data-generating initiatives, all in support of The mmrf's mission.
In 2023, The mmrf continued to build out The mmrf immune atlas initiative (The "atlas"), an immune profiling and analytics platform using data and samples from The commpass study to generate data on The role of patient immunity in Myeloma disease biology and response to therapy, and to support and speed efforts to make immunotherapy more precise for Myeloma patients. The atlas will describe The immune landscape in Myeloma and how it changes throughout The course of The disease and treatment. This effort is a critical first step to establish guidelines and alignment on how immune data is produced, prioritized, aggregated, and shared. At scale, it has The potential to identify new immunologic factors predictive of patient response or relapse to therapy, to identify new immune targets for drug development and, eventually, enable clinicians to customize treatments and therapies based on an individual's immune system.
In addition to The program expenses described above, corresponding activities in alignment with The overall goals of The organization are also supported. These include a portfolio of cutting-edge Research programs in basic science, which identifies new targets through genomics and proteomics Research; validation studies, which identify new compounds and combinations in Research models based on high-priority targets; and innovative clinical trials of novel and combination treatments. As a patient-founded organization, The mmrf stands together with those who are battling Multiple Myeloma - patients, families, physicians, researchers, and investors. At The same time, The mmrf stands apart with its innovative approach. The mmrf generates, interprets, and activates The largest collection of high-quality data and places it in The public domain. The mmrf orchestrates The people, programs, and technologies necessary to speed The discovery of a cure for each and every patient.

Grants made by MMRF

GranteeGrant descriptionAmount
Icahn School of Medicine at Mount SinaiSite Investment Grant, Immunotherapy$1,964,644
Dana-Farber Cancer InstituteSite Investment Grant, Immunotherapy, Prevention$1,050,000
Washington University in St. Louis (Wash. U)Site Investment Grant, Immunotherapy$806,802
...and 15 more grants made

Who funds Multiple Myeloma Research Foundation (MMRF)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Vanguard Charitable Endowment ProgramFor Recipient's Exempt Purpose$2,218,343
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$1,013,249
Peter A and Marion W Schwartz Family Foundation TrustGeneral Support$400,000
...and 145 more grants received totalling $7,036,738

Personnel at MMRF

NameTitleCompensation
Michael AndreiniPresident and Chief Executive Officer$494,070
Rob MianiChief Financial Officer
Robert MianiTreasurer and Chief Financial Officer$385,910
Karen DietzChief Administrative Officer and General Counsel$271,181
Hearn Jay ChoChief Medical Officer$208,833
...and 25 more key personnel

Financials for MMRF

RevenuesFYE 12/2023
Total grants, contributions, etc.$30,976,388
Program services$1,281,492
Investment income and dividends$1,696,550
Tax-exempt bond proceeds$0
Royalty revenue$192
Net rental income$0
Net gain from sale of non-inventory assets$-4,032
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$33,950,590

Form 990s for MMRF

Fiscal year endingDate received by IRSFormPDF link
2023-122024-09-24990View PDF
2022-122023-10-30990View PDF
2021-122022-11-08990View PDF
2020-122021-09-16990View PDF
2019-122021-02-18990View PDF
...and 13 more Form 990s
Data update history
October 22, 2024
Used new vendors
Identified 2 new vendors, including , and
September 25, 2024
Updated personnel
Identified 5 new personnel
August 10, 2024
Received grants
Identified 37 new grant, including a grant for $400,000 from Peter A and Marion W Schwartz Family Foundation Trust
May 18, 2024
Received grants
Identified 3 new grant, including a grant for $125,000 from The Goldstein Family Foundation
January 23, 2024
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchOperates internationallyNational levelCommunity engagement / volunteeringGala fundraisersTax deductible donationsAccepts online donations
General information
Address
383 Main Ave 5th FL
Norwalk, CT 06851
Metro area
Bridgeport-Stamford-Norwalk, CT
County
Western Connecticut Planning Region, CT
Website URL
themmrf.org/ 
Phone
(203) 229-0464
Facebook page
theMMRF 
Twitter profile
@themmrf 
IRS details
EIN
06-1504413
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1998
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
119917
FTB Entity ID
2566070
AB 488 data last updated ("as-of") date
2024-11-20
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