EIN 22-2762623

Narcolepsy Network

Name: Narcolepsy Network financials for 2022
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

Camas

State

Washington

Year formed

1986

Most recent tax filings

2022-12-01

NTEE code, primary

G50: Nerve, Muscle, and Bone Diseases

Description

Narcolepsy Network dedicates itself to improving the lives of people with narcolepsy. Its goals include fostering early diagnoses, advocating for all PWNS, promoting and supporting scientific research for treatments, prevention and cure, educating the public about narcolepsy, and forming support groups. The organization offers weekly virtual support groups, financial assistance to in-person support groups, and awareness programs like virtual clinical update webinar series.

Total revenues

$395,403

2022

Total expenses

$562,494

2022

Total assets

$499,771

2022

Num. employees

2022

Program areas at Narcolepsy Network

Annual conference.

Awareness and education - virtual clinical update webinar series.

Support and advocacy - provide weekly virtual support groups and finanical assistance to in-person support groups.

Grants made by Narcolepsy Network

Grantee	Grant description	Grant year	Amount
Center for Courageous Kids (CCK)	Family Retreat Grant for Families of Children With Narcolepsy.	2017-12	$10,000

Who funds Narcolepsy Network

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
Fidelity Investments Charitable Gift Fund	2023-06	For Grant Recipient's Exempt Purposes	$7,000
The Oregon Community Foundation	2022-12	Mental Health and Substance Abuse	$6,000
AmazonSmile Foundation	2022-12	General Support	$2,188
...and 1 more grant received

Personnel at Narcolepsy Network

Name	Title	Compensation	Date of data
Amy Kant	Transition Director		2022-09-08
Megan McLean	Marketing and Communications Manager		2022-09-08
Keith Harper	President	$0	2023-11-15
John Ensminger	Treasurer	$0	2022-12-31
Rajeev Sachdeva	Secretary and Treasurer	$0	2022-12-31
...and 7 more key personnel

Financials for Narcolepsy Network

Revenues	FYE 12/2022	FYE 12/2021	% Change
Total grants, contributions, etc.	$336,318	$355,184	-5.3%
Program services	$55,919	$21,861	155.8%
Investment income and dividends	$4,065	$1,247	226%
Tax-exempt bond proceeds	$0	$0	-
Royalty revenue	$0	$0	-
Net rental income	$0	$0	-
Net gain from sale of non-inventory assets	$0	$0	-
Net income from fundraising events	$-899	$-8,265	89.1%
Net income from gaming activities	$0	$0	-
Net income from sales of inventory	$0	$0	-
Miscellaneous revenues	$0	$0	-
Total revenues	$395,403	$370,027	6.9%

Form 990s for Narcolepsy Network

Fiscal year ending	Date received by IRS	Form	PDF link
2022-12	2023-11-15	990	View PDF
2021-12	2022-11-02	990	View PDF
2020-12	2021-09-07	990	View PDF
2019-12	2020-10-15	990	View PDF
2018-12	2019-06-19	990	View PDF
...and 9 more Form 990s

Organizations like Narcolepsy Network

Organization	Type	Location	Revenue
Miles for Migraine	501(c)(3)	Jericho, VT	$1,647,652
Neurofibromatosis Midwest	501(c)(3)	Saint Charles, IL	$241,223
Epilepsy Association	501(c)(3)	Orlando, FL	$813,501
The Myositis Association	501(c)(3)	Columbia, MD	$1,317,262
The Chelsea Hutchison Foundation	501(c)(3)	Aurora, CO	$402,834
The Max Cure Foundation	501(c)(3)	New York, NY	$289,084
Reflex Sympathetic Dystrophy Syndrome Association of America	501(c)(3)	Milford, CT	$606,080
Lupus Foundation of America DC / MD / VA Chapter	501(c)(3)	Washington, DC	$761,790
ALS Hope Foundation	501(c)(3)	Philadelphia, PA	$695,297
Center for Neurologic Study	501(c)(3)	La Jolla, CA	$420,875

Data update history

July 8, 2024

Used new vendors

Identified 1 new vendor, including

January 19, 2024

Posted financials

Added Form 990 for fiscal year 2022

January 12, 2024

Updated personnel

Identified 1 new personnel

January 2, 2024

Received grants

Identified 2 new grant, including a grant for $6,000 from The Oregon Community Foundation

January 2, 2024

Received grants

Identified 1 new grant, including a grant for $2,188 from AmazonSmile Foundation

Nonprofit Types

Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities

Issues

HealthEducationDiseases and disorders

Characteristics

MembershipsConducts researchLobbyingFundraising eventsNational levelTax deductible donationsAccepts online donations

General information

Address: 3242 Ne 3rd Ave 1101; Camas, WA 98607
Metro area: Portland-Vancouver-Hillsboro, OR-WA
County: Clark County, WA
Website URL: narcolepsynetwork.org/
Phone: (888) 292-6522

IRS details

EIN: 22-2762623
Fiscal year end: December
Taxreturn type: Form 990
Year formed: 1986
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Independent

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Narcolepsy Network

Program areas at Narcolepsy Network

Grants made by Narcolepsy Network

Who funds Narcolepsy Network

Personnel at Narcolepsy Network

Financials for Narcolepsy Network

Form 990s for Narcolepsy Network

Organizations like Narcolepsy Network

Nonprofits

Product

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