EIN 04-3068130

National Brain Tumor Society (NBTS)

IRS 501(c) type
501(c)(3)
Num. employees
52
City
Year formed
1989
Most recent tax filings
2023-12-01
Description
National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.
Total revenues
$13,349,365
2023
Total expenses
$12,250,340
2023
Total assets
$15,961,971
2023
Num. employees
52
2023

Program areas at NBTS

Research: National Brain Tumor Society (nbts) throughout its history has funded some of the most important discoveries that have led to the advancement of Brain Tumor research. Today, nbts is funding innovative team-science initiatives including projects in our defeat Brain tumors program portfolio designed to translate discoveries into transformative medical breakthroughs for adults and children with Brain tumors. Our "defeat" program brings together world-renown institutions to accelerate the pace of research by requiring data sharing and partnerships with industry. Nbts Brain Tumor investment fund catalyzes the Brain Tumor biotech and biopharma space bridging promising academic research to move into industrial development. The nbts' research roundtable program convenes stakeholders to take on barriers and opportunities to Brain Tumor treatment development.
Information, awareness and remembrance: nbts is committed to helping patients and care partners obtain essential information from the time of diagnosis including information about treatment options and clinical trials. Through its Brain Tumor experience website, personalized support and navigation for patients and group support programs, nbts provides, to many across the u.s. and globally, timely information and is available to help connect to treatments centers and support services. It also helps patients find clinical trials through the nbts clinical trials finder. Nbts also connects patients to each other through regional events and helps families honor their loved ones. The events provide access to treatment providers for families and friends, and help make the broader public more aware of our cause through communications programs.
Public policy & advocacy: nbts is well-recognized as a leader in public policy related to Brain tumors and cancer generally. Each year we advance a specific policy agenda with congress and the executive branch to improve patients lives and the likelihood of the development of new treatments. Nbts advocacy efforts have led to greater federal investment in Brain Tumor research and improved policies that speed the research process. Through advocacy patients and their families, and researchers also have a voice and can come to Washington dc for our signature head to the hill held annually.

Grants made by NBTS

GranteeGrant descriptionAmount
Yale UniversityResearch$1,810,000
Regents Univ of CaliforniaResearch$280,000
Partners Healthcare SystemResearch$101,375
...and 3 more grants made

Who funds National Brain Tumor Society (NBTS)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Accelerate Brain Cancer CureTo Promote Brain Cancer Research.$1,861,035
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$1,508,105
The Blackbaud Giving FundGeneral Support$252,531
...and 160 more grants received totalling $5,581,838

Personnel at NBTS

NameTitleCompensation
David AronsChief Executive Officer$269,769
Dorothy WhalenChief Financial Officer$168,680
Danielle LeachChief of Comm and Government Relations / Chief of Community and Government Relations$151,951
Katie GermainChief Marketing and Comm Officer$155,700
Marisa PetrilloChief People Officer$129,374
...and 23 more key personnel

Financials for NBTS

RevenuesFYE 12/2023
Total grants, contributions, etc.$12,821,930
Program services$0
Investment income and dividends$369,617
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$157,818
Total revenues$13,349,365

Form 990s for NBTS

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-05990View PDF
2022-122023-08-25990View PDF
2021-122022-09-15990View PDF
2020-122021-05-21990View PDF
2019-122020-10-16990View PDF
...and 12 more Form 990s
Data update history
September 24, 2024
Posted financials
Added Form 990 for fiscal year 2023
September 22, 2024
Used new vendors
Identified 1 new vendor, including
September 21, 2024
Updated personnel
Identified 5 new personnel
August 25, 2024
Posted financials
Added Form 990 for fiscal year 2021
August 25, 2024
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingPeer-to-peer fundraisingOperates internationallyEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
55 Chapel St 006
Newton, MA 02458
Metro area
Boston-Cambridge-Newton, MA-NH
County
Middlesex County, MA
Website URL
braintumor.org/ 
Phone
(617) 924-9997
Facebook page
braintumors 
Twitter profile
@nbtstweets 
IRS details
EIN
04-3068130
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1989
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G40: Diseases of Specific Organs
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0150153
FTB Entity ID
3163298
AB 488 data last updated ("as-of") date
2024-10-16
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