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EIN 13-2992567

National Down Syndrome Society (NDSS)

IRS 501(c) type
501(c)(3)
Num. employees
29
City
Washington
State
District of Columbia
Year formed
1979
Most recent tax filings
2023-06-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The mission of the National Down Syndrome Society (NDSS) is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. They have over 350 affiliate groups across the country.
Total revenues
$3,354,289
2023
Total expenses
$4,160,847
2023
Total assets
$13,503,862
2023
Num. employees
29
2023

Grants made by NDSS

GranteeGrant descriptionAmount
National Disability Institute (NDI)To Support CPSD Coalition and Leadership Capacity$19,064
Regents of the University of California at San DiegoTo Support 21 Lab$10,000

Who funds National Down Syndrome Society (NDSS)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$89,225
American Online Giving FoundationGeneral Support$75,046
Mizel Family FoundationSupport of Charitable Purpose$60,000
...and 47 more grants received totalling $727,896

Personnel at NDSS

NameTitleCompensation
Kandi PickardPresident and Chief Executive Officer$168,353
Colleen HatcherChief of Staff
Sara GoldbergVice President Strategic Development$88,975
Michelle SaganDirector of Communications and Marketing
Bart DevonSenior Director of Public Policy
...and 27 more key personnel

Financials for NDSS

RevenuesFYE 06/2023
Total grants, contributions, etc.$2,046,293
Program services$246,749
Investment income and dividends$284,376
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$261,167
Net income from fundraising events$402,932
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$112,772
Total revenues$3,354,289

Form 990s for NDSS

Fiscal year endingDate received by IRSFormPDF link
2023-062024-02-12990View PDF
2022-062023-02-09990View PDF
2021-062021-12-23990View PDF
2020-062021-04-06990View PDF
2019-062021-03-04990View PDF
...and 10 more Form 990s
Data update history
October 1, 2024
Updated personnel
Identified 9 new personnel
September 21, 2024
Received grants
Identified 7 new grant, including a grant for $60,000 from Mizel Family Foundation
June 5, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 22, 2024
Updated personnel
Identified 3 new personnel
May 20, 2024
Used new vendors
Identified 4 new vendors, including , , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingNational levelEndowed supportCommunity engagement / volunteeringProvides scholarshipsGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
1155 15th St NW Suite 540
Washington, DC 20005
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
District of Columbia, DC
Website URL
ndss.org/ 
Phone
(800) 221-4602
Facebook page
NDSS1979 
Twitter profile
@ndss 
IRS details
EIN
13-2992567
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1979
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
116047
FTB Entity ID
1883049
AB 488 data last updated ("as-of") date
2024-11-06
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