EIN 13-2992567

National Down Syndrome Society (NDSS)

Name: National Down Syndrome Society (NDSS) financials for 2023
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

Washington

State

District of Columbia

Year formed

1979

Most recent tax filings

2023-06-01

NTEE code, primary

G20: Birth Defects and Genetic Diseases

Description

The mission of the National Down Syndrome Society (NDSS) is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. They have over 350 affiliate groups across the country.

Total revenues

$3,354,289

2023

Total expenses

$4,160,847

2023

Total assets

$13,503,862

2023

Num. employees

2023

Grants made by NDSS

Grantee	Grant description	Grant year	Amount
National Disability Institute (NDI)	To Support CPSD Coalition and Leadership Capacity	2015-03	$19,064
Regents of the University of California at San Diego	To Support 21 Lab	2015-03	$10,000

Who funds National Down Syndrome Society (NDSS)

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
Fidelity Investments Charitable Gift Fund	2022-06	For Grant Recipient's Exempt Purposes	$92,763
Fidelity Investments Charitable Gift Fund	2022-06	For Grant Recipient's Exempt Purposes	$92,763
Schwab Charitable Fund	2023-06	Health	$54,725
...and 34 more grants received totalling $656,183

Personnel at NDSS

Name	Title	Compensation	Date of data
Kandi Pickard	President	$161,797	2023-02-09
Bart Devon	Senior Director of Public Policy		2021-12-16
Sara Goldberg	Senior Director	$90,455	2022-06-30
Michelle Ray	Director of National Inclusive Health and Sports Program		2021-12-16
Melissa Robertson	Manager of Operations		2021-12-16
...and 21 more key personnel

Financials for NDSS

Revenues	FYE 06/2023	FYE 06/2022	% Change
Total grants, contributions, etc.	$2,046,293	$2,713,242	-24.6%
Program services	$246,749	$169,793	45.3%
Investment income and dividends	$284,376	$334,952	-15.1%
Tax-exempt bond proceeds	$0	$0	-
Royalty revenue	$0	$0	-
Net rental income	$0	$0	-
Net gain from sale of non-inventory assets	$261,167	$1,306	19897.5%
Net income from fundraising events	$402,932	$414,033	-2.7%
Net income from gaming activities	$0	$0	-
Net income from sales of inventory	$0	$0	-
Miscellaneous revenues	$112,772	$18,629	505.4%
Total revenues	$3,354,289	$3,651,955	-8.2%

Form 990s for NDSS

Fiscal year ending	Date received by IRS	Form	PDF link
2022-06	2023-02-09	990	View PDF
2021-06	2021-12-23	990	View PDF
2020-06	2021-04-06	990	View PDF
2019-06	2021-03-04	990	View PDF
2019-03	2021-03-04	990	View PDF
...and 9 more Form 990s

Organizations like NDSS

Organization	Type	Location	Revenue
Williams Syndrome Association	501(c)(3)	Newark, NJ	$2,421,502
Huntington's Disease Society of America (HDSA)	501(c)(3)	New York, NY	$10,709,965
Arthritis Foundation Upper Midwest Region	501(c)(3)	St Paul, MN	$2,891,319
Hydrocephalus Association (HA)	501(c)(3)	Bethesda, MD	$4,148,543
American Council of the Blind	501(c)(3)	Alexandria, VA	$2,592,235
Epilepsy Foundation New England	501(c)(3)	Lowell, MA	$6,573,455
New England Hemophilia Association	501(c)(3)	Dedham, MA	$1,196,989
Down Syndrome Innovations	501(c)(3)	Shawnee Mission, KS	$1,538,198
Hemophilia Foundation of Southern California (HFSC)	501(c)(3)	Pasadena, CA	$1,225,164
Down Syndrome Association of Greater Cincinnati	501(c)(3)	Cincinnati, OH	$2,821,991

Data update history

October 24, 2023

Received grants

Identified 3 new grant, including a grant for $16,235 from The Blackbaud Giving Fund

June 27, 2023

Received grants

Identified 8 new grant, including a grant for $47,253 from American Online Giving Foundation

June 18, 2023

Posted financials

Added Form 990 for fiscal year 2022

June 16, 2023

Updated personnel

Identified 4 new personnel

May 7, 2023

Received grants

Identified 2 new grant, including a grant for $32,117 from Health First - America's Charities

Nonprofit Types

Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities

Issues

HealthDiseases and disorders

Characteristics

Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingNational levelEndowed supportCommunity engagement / volunteeringProvides scholarshipsGala fundraisersFundraising races, competitions, and tournamentsTax deductible donations

General information

Address: 1155 15th St NW Suite 540; Washington, DC 20005
Metro area: Washington-Arlington-Alexandria, DC-VA-MD-WV
County: District of Columbia, DC
Website URL: ndss.org/
Phone: (800) 221-4602
Facebook page: NDSS1979
Twitter profile: @ndss

IRS details

EIN: 13-2992567
Fiscal year end: June
Taxreturn type: Form 990
Year formed: 1979
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: G20: Birth Defects and Genetic Diseases
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Independent

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National Down Syndrome Society (NDSS)

Grants made by NDSS

Who funds National Down Syndrome Society (NDSS)

Personnel at NDSS

Financials for NDSS

Form 990s for NDSS

Organizations like NDSS

Nonprofits

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