EIN 13-5661935

National Multiple Sclerosis Society

IRS 501(c) type
501(c)(3)
Num. employees
968
Year formed
1946
Most recent tax filings
2023-09-01
Description
The National MS Society's mission is that people affected by MS can live their best lives as they stop MS in its tracks, restore what has been lost and end MS forever.
Total revenues
$149,451,246
2023
Total expenses
$172,885,857
2023
Total assets
$184,229,514
2023
Num. employees
968
2023

Program areas at National Multiple Sclerosis Society

Client and community services (see schedule o)client and community services - the Society aims to empower people affected by ms to solve everyday challenges. We feel if people are informed, connected and supported by loved ones, their communities, their healthcare providers and the Society, they will have improved quality of life, increased confidence, make new connections and take positive actions. We achieve this by being a trusted source of support for people living with ms and health care providers through our ms navigator service and the educational programming and connection sites we offer online, in person and on demand or self-service. Ms navigators partner with individuals to navigate the challenges of ms unique to each situation. They provide: information and education; emotional support resources; assist with the complexities of finding a healthcare provider, benefits, insurance and access to coverage, and employment; resources to face financial challenges and plan for the future; wellness strategies that can make an impact on quality of life with ms; assessment of personalized case management; and crisis intervention in times of need. In 2023, ms navigators provided support to 37,996 people. Our self-service applications assisted an additional 168,517 searches for people finding doctors and other resources directly.in addition, 8,068 individuals participated in 120 live educational programs. The program content was also accessible on demand, enabling an additional 157,172 individuals from 82 countries to engage with the material. Topics included progressive ms, managing ms fatigue, bladder dysfunction in ms as well as a variety of topics related to physical and emotional wellness to name a few. In our efforts to connect with more newly diagnosed, young, rural and ethnically diverse people affected by ms the Society continued its new to ms program, 4th annual black ms experience summit and our 2nd annual-hispanic latinx summit.community programs include collaborating with other community organizations, focusing on access to healthcare, rehabilitation, treatments and therapies; long-term care; disability rights issues; vocational training and rehabilitation, wellness and fitness; and outreach and education to rural and underserved populations.
Research and scientific studies (see schedule o)research and scientific studies - in fiscal 2023, the Society invested $33.9 million to support 279 new and ongoing research projects around the world aimed at stopping ms in its tracks, restoring function, and ending the disease forever. The Society engaged 108 expert scientific and peer reviewers to evaluate 313 proposals for research grants, fellowships and early career awards, commercial research and development agreements, and targeted research grants. We also engaged 16 lay community reviewers to help the Society identify the most promising and appropriate research investments.research priority areas to drive breakthroughs to a cure include: accelerating promising research to empower people affected by ms to live their best lives and advance the pathways to ms cures roadmap, including: stopping disease activity and progression through precision medicine and early detection; restoring what's been lost by reversing symptoms and disability through regeneration and functional recovery enhanced by rehabilitation and wellness; and ending the disease through prevention by limiting exposure to risk factors across the population and for those most at-risk.
Public education (see schedule o)public education - people with ms can better manage their disease when they have the support and understanding of the people around them-from doctors to employers to family members. That's why we work relentlessly to tell the world what it means to live with ms. we educate the public through the Society's awareness campaigns, public service announcements, and momentum, which is the Society's flagship magazine distributed quarterly to nearly 500,000 people living with ms, healthcare providers, and supporters of the Society. We send bimonthly emails with news and information about ms to more than 900,000 and nearly 7 million people visit the Society's website each year to access information and support and get involved.in addition, many people get engaged in conversations and learn more about ms via the Society's social media, with more than 1 million followers.
Professional education and training - the Society wants scientists and healthcare professionals to be aware of and trained in ms so that the very best expertise worldwide is engaged in finding treatments and solutions for everyone with ms. This includes activities and programs designed to improve the knowledge, skills, and critical judgement of scientists, physicians and other healthcare professionals engaged (directly or indirectly) in providing services to people living with ms by keeping them abreast of new diagnostic techniques and therapies - 154 clinicians, who provide care for approximately 5,300 people with ms, participated in the echo ms program in 2023. 98% reported they would attend another program sponsored by the Society.

Grants made by National Multiple Sclerosis Society

GranteeGrant descriptionAmount
Columbia UniversityResearch$1,761,092
Johns Hopkins University (JHU)Research$1,712,105
University of UtahResearch$1,555,087
...and 68 more grants made totalling $18,708,491

Who funds National Multiple Sclerosis Society

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$3,712,266
American Online Giving FoundationGeneral Support$2,395,091
Schwab Charitable FundHealth$1,361,072
...and 595 more grants received totalling $17,657,954

Personnel at National Multiple Sclerosis Society

NameTitleCompensation
Cynthia ZagieboyloPresident and Chief Executive Officer$590,389
Tami CaesarChief Operating Officer$367,137
Cindy BertrandoChief Financial Officer
John ScottChief Marketing and Development Officer$325,645
Tim EnsuresChief Advocacy, Services and Science Officer
...and 20 more key personnel

Financials for National Multiple Sclerosis Society

RevenuesFYE 09/2023
Total grants, contributions, etc.$145,194,411
Program services$5,595
Investment income and dividends$4,479,229
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$233,094
Net gain from sale of non-inventory assets$-1,253,582
Net income from fundraising events$0
Net income from gaming activities$200,444
Net income from sales of inventory$0
Miscellaneous revenues$592,055
Total revenues$149,451,246

Form 990s for National Multiple Sclerosis Society

Fiscal year endingDate received by IRSFormPDF link
2023-092024-06-17990View PDF
2022-092023-05-24990View PDF
2021-092022-06-28990View PDF
2020-092021-06-02990View PDF
2019-092021-01-21990View PDF
...and 16 more Form 990s

Organizations like National Multiple Sclerosis Society

OrganizationLocationRevenue
ALS Association (ALS)Arlington, VA$55,567,608
Arthritis FoundationAtlanta, GA$59,471,904
Muscular Dystrophy AssociationChicago, IL$59,437,892
Parkinsons Disease Foundation Incorporated (PDF)New York, NY$48,333,484
The Leukemia and Lymphoma SocietyincRye Brook, NY$378,338,490
Cystic Fibrosis FoundationBethesda, MD$248,630,352
Susan G KomenDallas, TX$107,597,705
American Cancer Society (ACS)Atlanta, GA$656,838,115
Lupus Research Alliance (ALR)New York, NY$50,861,497
National Kidney Foundation (NKF)New York, NY$45,765,317
Data update history
August 13, 2024
Updated personnel
Identified 4 new personnel
August 10, 2024
Received grants
Identified 115 new grant, including a grant for $2,395,091 from American Online Giving Foundation
August 4, 2024
Posted financials
Added Form 990 for fiscal year 2023
July 31, 2024
Used new vendors
Identified 7 new vendors, including , , , , , , and
May 17, 2024
Received grants
Identified 12 new grant, including a grant for $44,151 from Givengain Foundation USA
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelReceives government fundingEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
733 Third Ave
New York, NY 10017
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
nationalmssociety.org/ 
Phone
(800) 344-4867
Facebook page
nationalmssociety 
Twitter profile
@mssociety 
IRS details
EIN
13-5661935
Fiscal year end
September
Taxreturn type
Form 990
Year formed
1946
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
092695
FTB Entity ID
0221363
AB 488 data last updated ("as-of") date
2024-11-06
Free account sign-up

Want updates when National Multiple Sclerosis Society has new information, or want to find more organizations like National Multiple Sclerosis Society?

Create free Cause IQ account