EIN 23-2265173

National Organization for Albinism and Hypopigmentation

Name: National Organization for Albinism and Hypopigmentation financials for 2022
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

East Hampstead

State

New Hampshire

Year formed

1984

Most recent tax filings

2022-12-01

NTEE code, primary

G20: Birth Defects and Genetic Diseases

Description

National Organization for Albinism and Hypopigmentation serves as a conduit for accurate and authoritative information about all aspects of living with albinism, providing a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship. Noah also grants biennial national grants and annual grants to support programs that promote albinism awareness and education. Its programs include implementation expenses for organizational core programs.

Total revenues

$589,541

2022

Total expenses

$761,704

2022

Total assets

$687,813

2022

Num. employees

2022

Program areas at National Organization for Albinism and Hypopigmentation

Biennial National grants - annual grants to support programs that promote Albinism awareness and education

Organizational core program implementation expenses

Produce a quarterly magazine "Albinism insight"

Other services to raise Albinism awareness.

Grants made by National Organization for Albinism and Hypopigmentation

Grantee	Grant description	Grant year	Amount
Columbia University	Mason Grant	2022-12	$25,000
University of Pittsburgh	Byrne Grant	2022-12	$25,000

Who funds National Organization for Albinism and Hypopigmentation

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
The Vision For Tomorrow Foundation	2022-12	To Sponsor Albinism Research Program	$150,000
The Blackbaud Giving Fund	2023-12	General Support	$38,944
American Online Giving Foundation	2023-03	General Support	$11,837
...and 5 more grants received

Personnel at National Organization for Albinism and Hypopigmentation

Name	Title	Compensation	Date of data
Karen Bly	Board Member	$0	2023-08-03
Donte Mickens	Chair	$0	2023-11-14
Elliot Ostrove	Board Vice Chair	$0	2023-08-03
Sonja Harris	Board Secretary	$0	2023-08-03
Mark A Larue	Past Board Treasurer / Board Member	$0	2022-12-31
...and 7 more key personnel

Financials for National Organization for Albinism and Hypopigmentation

Revenues	FYE 12/2022	FYE 12/2021	% Change
Total grants, contributions, etc.	$262,068	$482,007	-45.6%
Program services	$241,180	$26,540	808.7%
Investment income and dividends	$56,083	$16,484	240.2%
Tax-exempt bond proceeds	$0	$0	-
Royalty revenue	$0	$0	-
Net rental income	$0	$0	-
Net gain from sale of non-inventory assets	$0	$6,743	-100%
Net income from fundraising events	$30,210	$34,802	-13.2%
Net income from gaming activities	$0	$0	-
Net income from sales of inventory	$0	$0	-
Miscellaneous revenues	$0	$0	-
Total revenues	$589,541	$566,576	4.1%

Form 990s for National Organization for Albinism and Hypopigmentation

Fiscal year ending	Date received by IRS	Form	PDF link
2022-12	2023-11-14	990	View PDF
2021-12	2022-11-15	990	View PDF
2020-12	2021-10-21	990	View PDF
2019-12	2021-01-21	990	View PDF
2018-12	2019-12-04	990	View PDF
...and 10 more Form 990s

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Midwest Hemophilia Association	501(c)(3)	Ozark, MO	$264,464
Sickle Cell Foundation of Tennessee	501(c)(3)	Memphis, TN	$258,498
New Jersey State Organization of Cystic Fibrosis	501(c)(3)	Totowa, NJ	$654,596
Sickle Cell Association of South Louisiana	501(c)(3)	Baton Rouge, LA	$328,701
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CDH International	501(c)(3)	Wake Forest, NC	$213,512
JB'S Keys To DMD	501(c)(3)	Dover, MA	$439,783
Down Syndrome Organization of Southern Nevada	501(c)(3)	Las Vegas, NV	$786,867
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Data update history

January 24, 2024

Posted financials

Added Form 990 for fiscal year 2022

December 26, 2023

Received grants

Identified 5 new grant, including a grant for $150,000 from The Vision For Tomorrow Foundation

August 3, 2023

Updated personnel

Identified 6 new personnel

July 16, 2023

Posted financials

Added Form 990 for fiscal year 2021

July 5, 2023

Updated personnel

Identified 1 new personnel

Nonprofit Types

Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities

Issues

HealthDiseases and disorders

Characteristics

Conducts researchFundraising eventsTax deductible donationsAccepts online donations

General information

Address: PO Box 959; East Hampstead, NH 03826
Metro area: Boston-Cambridge-Newton, MA-NH
County: Rockingham County, NH
Website URL: albinism.org/
Phone: (603) 887-2310

IRS details

EIN: 23-2265173
Fiscal year end: December
Taxreturn type: Form 990
Year formed: 1984
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: G20: Birth Defects and Genetic Diseases
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Independent

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National Organization for Albinism and Hypopigmentation

Program areas at National Organization for Albinism and Hypopigmentation

Grants made by National Organization for Albinism and Hypopigmentation

Who funds National Organization for Albinism and Hypopigmentation

Personnel at National Organization for Albinism and Hypopigmentation

Financials for National Organization for Albinism and Hypopigmentation

Form 990s for National Organization for Albinism and Hypopigmentation

Organizations like National Organization for Albinism and Hypopigmentation

Nonprofits

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