Program areas at NODCC
the Nodcc has several outreach programs to help raise the awareness and improve education among the stakeholders in the community. We host educational exhibits at 4 professional medical conferences & host 36 monthly virtual meetings for parents/caregivers and adults with dcc in our community.
the Nodcc conference and regional meetings are a way of providing support and community to our families affected by dcc. In 2023 we held 4 regional meetings and began planning for our bi-annual conference in 2024.
the Nodcc is deeply committed to improving the lives of those affected by a disorder of the Corpus Callosum by providing direct support as well as educational resources in collaboration with a wide range of stakeholders to raise awareness and knowledge. In 2023, Nodcc staff provided one on one support through phone calls, emails, and interactions on social media totaling over 1,200 touches. We provided 62 welcome packets to newly diagnosed families. We maintain an increasing number of resources on our website, brochure, educational booklet educational videos on youtube.
Who funds National Organization of Disorders of the Corpus Callosum (NODCC)
Grants from foundations and other nonprofits
Personnel at NODCC
| Name | Title | Compensation | Date of data |
|---|
| Lynn Snyder | Director | $0 | 2023-07-19 |
| Al Cordasco | Secretary | $0 | 2022-12-31 |
| Natalie Erb | Treasurer | $0 | 2022-12-31 |
| Kim Manning | Vice President | $0 | 2022-12-31 |
| Kevin Hight | President | $0 | 2022-12-31 |
| ...and 4 more key personnel |
Financials for NODCC
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $119,037 | $112,795 | 5.5% |
| Program services | $56,853 | $177,355 | -67.9% |
| Investment income and dividends | $11,799 | $553 | 2033.6% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $28,140 | $48,769 | -42.3% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $215,829 | $339,472 | -36.4% |
Organizations like NODCC
| Organization | Type | Location | Revenue |
|---|
| Midwest Hemophilia Association | 501(c)(3) | Ozark, MO | $264,464 |
| Walter E Boehm Birth Defects Center | 501(c)(3) | Chattanooga, TN | $164,169 |
| Kentucky Hemophilia Foundation | 501(c)(3) | Louisville, KY | $285,400 |
| United Cerebral Palsy Association of Greater Indiana | 501(c)(3) | Indianapolis, IN | $206,299 |
| Phelan Mcdermid Syndrome Foundation | 501(c)(3) | Osprey, FL | $1,062,761 |
| Virginia Hemophilia Foundation | 501(c)(3) | Richmond, VA | $512,482 |
| The Northern Ohio Hemophilia Foundation | 501(c)(3) | Cleveland, OH | $755,538 |
| Down Syndrome Association of Middle Tennessee | 501(c)(3) | Hermitage, TN | $527,095 |
| Down Syndrome Indiana | 501(c)(3) | Indianapolis, IN | $359,371 |
| Save One Life | 501(c)(3) | Danvers, MA | $1,076,794 |
Data update history
October 23, 2024
Posted financials
Added Form 990 for fiscal year 2023
February 3, 2024
Received grants
Identified 2 new grant, including a grant for $15,000 from The Fried Foundation August 26, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 24, 2023
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsEndowed supportTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 18032-c Lemon Dr PMB 363
- Yorba Linda, CA 92886
- Metro area
- Los Angeles-Long Beach-Anaheim, CA
- County
- Orange County, CA
- Website URL
- nodcc.org/Â
- Phone
- (717) 747-0063
IRS details
- EIN
- 33-1029337
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2005
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- 128940
- FTB Entity ID
- 2796862
- AB 488 data last updated ("as-of") date
- 2024-11-20
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