National Psoriasis Foundation

Researchnpf continued to lead collaborative, transformational research by ensuring that funding extramural research remined a priority. In fy 2023, npf invested over $3.4m in research grants and fellowship awards, including 9 awards to researchers studying the prevention, treatment, and mechanisms of psa. Introduced in 2020, the npf has invested over $3m towards the Psoriasis prevention initiative grant, a study aimed at preventing the onset on cardiovascular disease in people with psoriatic disease, and to provide, timely, adequate treatment for those deemed to be at high risk of developing cardiovascular disease. In fy 2023, the pilot phase of the university of pennsylvania-led study on cvd concluded and planning began for the launch of the full study. This unique, scalable model that tests care coordination across dermatologists and primary care providers saw promising early results in the pilot study and will grow to 20 sites in fy 2024. Of the 25% of people in phase one who were identified as having as high risk for cardiovascular disease, 85% followed through with an appointment with their health care provider to address cardiovascular disease. The psa diagnostic test grant was also renewed for two institutions working to develop a diagnostic test for psoriatic arthritis (psa). Npf continued its investment in the more than skin deep mental health grant, which funds research aimed at addressing mental health issues, a major psoriatic disease comorbidity. The npf collaborated with public-private partners in the accelerated medicines partnership for autoimmune and immune-mediated diseases initiative, published several abstracts and papers, and brought the internally generated data to the community.

Advocacynpf continued to advocate on both step therapy and copay accumulator adjustment programs to ensure patients have affordable access to therapies. Npf also leveraged thousands of advocates to work for health insurance coverage improvements for the millions of people living with psoriatic disease, while also working to improve the safety and affordability of Psoriasis and psa treatments and increasing federal support for psoriatic disease research.

Professional educationnpf continued to expand and strengthen medical education programming targeting health care providers at all levels and stages of career. The 24th annual npf residents' meeting offered dermatology residents the latest in psoriatic disease treatment presented by experts in the field. Npf launched a first of its kind, medical school curriculum to help students gain a deeper understanding of psoriatic disease. Through its dedication to educating health care providers on psoriatic disease and its related diseases, npf has earned accreditation as a provider of continuing medical education. It's part of our efforts to ensure all different types of health care providers understand this complicated disease. Npf offers the psound bytes cme podcast, webinars, and in-person classes and seminars for a wide range of audiences and publishes the journal of Psoriasis and psoriatic arthritis, a peer reviewed outlet featuring cme articles.

Education, outreach, and patient servicesnpf continued executing on a 3-year grant from the centers for disease control and prevention chronic disease education and awareness (cdea) program totaling nearly $1 million to raise awareness about Psoriasis as an immune-mediated, systemic inflammatory disease among the general public, public health professionals, and health care providers. Funding from this grant has supported npf continuing medical education (cme) programs, patient navigation center (pnc), and npf outreach and awareness activities.since 2016, npf's patient navigation center has supported over 85,000 patients and their caregivers with free, personalized support designed to help them understand psoriatic disease and treatment options, navigate insurance challenges, and find the appropriate health care provider. Npf advance magazine continued to provide the latest information, stories, and resources five times annually for over 25,000 print subscribers and hundreds of thousands of online readers. Each week, more than 283,000 people received advance weekly, the official patient-focused e-newsletter of npf.npf provided a comprehensive set of educational and informational resources to over 3.6 million visitors to psoriasis.org and associated sites. As the top search result for scalp Psoriasis and 2nd result for Psoriasis, npf provided accurate health and medical information to millions living with psoriatic disease. Npf was also cited in 8.7k outside articles.