Program areas at Necrotizing Enterocolitis NEC Society
In 2023, the NEC Society reached more patient-families affected by necrotizing enterocolitis (NEC) than ever before. We also hosted North Americas only conference on NEC, which brought together more than 200 participants from 9 countires and 35 US states. In partnership with our Scientific Advisory Council and Board of Directors, we published more than 200 research articles on NEC. We also released a storybook for bereaved families, titled Forever Our Little One. Our communitys strength inspires us to work tirelessly toward a world without the devastation of NEC. We invite you to learn more here: httpsnecsocietyorgwpcontentupload...
The NEC Society provided educational resourcers of empowerment and comfort, including storybooks, to more than 500 families with a child recently diagnosed with NEC or who recently lost their child to NEC. The NEC Biorepository enrolled more than 300 infants, bringing us closer to understanding how and why this disease occurs so we can learn how to prevent the disease. The NEC Society also presented at and participated in the Pediatric Academic Socieities Meeting, the American Academy of Pediatrics Meeting, and conferneces around North America througout the year to advance the science of NEC and urgency of our work. We also continued to expand our patient-family and clinician-scientist communities through the NEC Research Incubator.
The NEC Symposium is the only conference in North America focused on necrotizing enterocolitis and the only NEC meeting in the world that unities the patient-family and clinician-scientist community. The NEC Symposium, hosted in partnership with Cincinnati Childrens Hospital, presented 20 educational sessions to more than 200 participants from 9 countries and 35 US states. The conference aimed to transform our newly established NEC Research Priorities into actionable research projects. The collaborations, research, and advocacy stemming from the 2023 NEC Symposium will reverberate in the NICU community for years. We invite you to learn more here: httpsnecsocietyorg2023necsymposium
Grants made by Necrotizing Enterocolitis NEC Society
Who funds Necrotizing Enterocolitis NEC Society
Grants from foundations and other nonprofits
Personnel at Necrotizing Enterocolitis NEC Society
| Name | Title | Compensation | Date of data |
|---|
| Jennifer Canvasser, MSW | Founder and Executive Director | $45,541 | 2023-12-05 |
| Julia Goldstein, BA | Development Director | | 2023-12-05 |
| Adam Masin, Esq. | Board Member | $0 | 2023-12-05 |
| Rebecca Meuninck, Ph.D. | Chair | $0 | 2023-12-05 |
| Erin Umberger, M.Arch | Director | $0 | 2023-12-05 |
| ...and 3 more key personnel |
Financials for Necrotizing Enterocolitis NEC Society
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $309,005 | $644,939 | -52.1% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $34,417 | $346 | 9847.1% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $7,887 | $6,308 | 25% |
| Total revenues | $351,309 | $651,593 | -46.1% |
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Data update history
December 5, 2023
Updated personnel
Identified 1 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchState / local levelTax deductible donationsAccepts online donations
General information
- Address
- 140 B St 128 Ste 5
- Davis, CA 95616
- Metro area
- Sacramento-Roseville-Folsom, CA
- County
- Yolo County, CA
- Website URL
- necsociety.org/Â
IRS details
- EIN
- 46-4426455
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2014
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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