EIN 20-1945347

Neuroendocrine Tumor Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
8
City
Year formed
2004
Most recent tax filings
2023-12-01
NTEE code, primary
Description
To fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.
Also known as...
Caring for Carcinoid Foundation
Total revenues
$3,196,257
2023
Total expenses
$3,580,473
2023
Total assets
$20,633,243
2023
Num. employees
8
2023

Program areas at Neuroendocrine Tumor Research Foundation

Neuroendocrine Tumor Research Foundation, inc (netrf) funds Research into the causes of Neuroendocrine tumors in order to find cures for these cancers.
Netrf conducts outreach to other net-related organizations in the united states and beyond to convene researchers and facilitate scientific collaboration. Through its work and leadership with these other groups, netrf advances understanding of Neuroendocrine tumors and the needs of net patients. Netrf also works with patient support groups to connect to the larger net community.
Netrf provides education and information for net patients and families through a variety of formats. Through its educational conferences, netrf presents the latest in Research and treatment from net physicians and clinicians. On its website, netrf offers educational articles, videos, podcasts, and a patient guide to help patients learn about their diagnosis and treatment options.

Grants made by Neuroendocrine Tumor Research Foundation

GranteeGrant descriptionAmount
University of California San Francisco / Ucsf Payroll OfficeResearch$270,000
North American Neuroendocrine Tumor Society (NANETS)Research$100,000
University of PittsburghResearch$100,000

Who funds Neuroendocrine Tumor Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Debacker Charitable TrustEncourage and To Facilitate Research for the Diagnosis, Control and Cure of Neuroendocrine Cancer$200,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$144,180
Schwab Charitable FundHealth$66,450
...and 23 more grants received totalling $672,606

Personnel at Neuroendocrine Tumor Research Foundation

NameTitleCompensation
Elyse GellermanChief Executive Officer$197,381
Susan HarringtonChief Development Officer$159,003
Christine CoffeyDirector of Communications$135,321
Anna Greene, PhDDirector of Research
Jessica Thomas, LCSWDirector of Patient Education
...and 5 more key personnel

Financials for Neuroendocrine Tumor Research Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$2,558,610
Program services$0
Investment income and dividends$533,005
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$104,642
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$3,196,257

Form 990s for Neuroendocrine Tumor Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-04-23990View PDF
2022-122023-05-08990View PDF
2021-122022-05-12990View PDF
2020-122021-05-24990View PDF
2019-122020-10-16990View PDF
...and 11 more Form 990s
Data update history
November 26, 2024
Received grants
Identified 1 new grant, including a grant for $5,185 from Pledgeling Foundation
November 5, 2024
Updated personnel
Identified 3 new personnel
October 2, 2024
Updated personnel
Identified 1 new personnel
July 13, 2024
Received grants
Identified 1 new grant, including a grant for $2,000 from Lynne and Richard Kaiser Family Foundation
May 19, 2024
Posted financials
Added Form 990 for fiscal year 2023
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchNational levelEndowed supportTax deductible donationsAccepts online donations
General information
Address
31 St James Ave 365
Boston, MA 02116
Metro area
Boston-Cambridge-Newton, MA-NH
County
Suffolk County, MA
Website URL
netrf.org 
Phone
(617) 948-2514
IRS details
EIN
20-1945347
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2004
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0247161
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-01-15
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