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EIN 22-2580173

Neurofibromatosis Midwest

IRS 501(c) type
501(c)(3)
Num. employees
6
City
Saint Charles
State
Illinois
Year formed
1981
Most recent tax filings
2023-09-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
To improve the lives of children, adults, and families impacted by Neurofibromatosis by focusing on and improving clinics, awareness, research, education and support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri. Education and support for those with Neurofibromatosis.
Total revenues
$241,223
2023
Total expenses
$262,588
2023
Total assets
$293,598
2023
Num. employees
6
2023

Program areas at Neurofibromatosis Midwest

Research/clinics/improved care Neurofibromatosis Midwest provides direct grants for research and research support. We also work with clinics in our region to improve care and access to care. Additionally, we work with the nf community and many other resources on additional programs or initiatives to improve the quality of life and care for nf patients and their families.
Support/education/awareness Neurofibromatosis Midwest provides education to individuals and families with Neurofibromatosis, to the medical community and to the public through an annual symposium; smaller local meetings; and printed and online materials. We provide free packets of information to newly diagnosed families and phone and online support. An annual grant is provided to send children with nf to camp. We also provide materials and opportunities to raise awareness.

Grants made by Neurofibromatosis Midwest

GranteeGrant descriptionAmount
University of Chicago Medical CenterMaintain Studies$34,000
Brainy Camps Children's NationalSummer Camp$13,000

Who funds Neurofibromatosis Midwest

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Veterans United Foundation2023 Walk4nf$5,000
The Baxter FoundationTo Support Organization's Mission$1,050
Hansen-Furnas FoundationGeneral$1,000
...and 4 more grants received

Personnel at Neurofibromatosis Midwest

NameTitleCompensation
Diana HaberkampExecutive Director$0
Andy RingoTreasurer$0
Lesli WegnerVice Chair$0
Denise DulceakBoard Chair$0
Peter OswaldVice Chair$0
...and 2 more key personnel

Financials for Neurofibromatosis Midwest

RevenuesFYE 09/2023
Total grants, contributions, etc.$230,293
Program services$0
Investment income and dividends$7,244
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$3,711
Net income from gaming activities$0
Net income from sales of inventory$-75
Miscellaneous revenues$50
Total revenues$241,223

Form 990s for Neurofibromatosis Midwest

Fiscal year endingDate received by IRSFormPDF link
2023-092024-02-27990View PDF
2022-092023-03-06990View PDF
2021-092022-03-04990View PDF
2020-092021-04-12990View PDF
2019-092020-09-29990View PDF
...and 9 more Form 990s
Data update history
July 14, 2024
Received grants
Identified 2 new grant, including a grant for $5,000 from Veterans United Foundation
May 25, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 18, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 15, 2023
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsNational levelEndowed supportTax deductible donationsAccepts online donations
General information
Address
473 Dunham Rd Suite 3
Saint Charles, IL 60174
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
County
Kane County, IL
Website URL
nfmidwest.org/ 
Phone
(630) 945-3562
IRS details
EIN
22-2580173
Fiscal year end
September
Taxreturn type
Form 990
Year formed
1981
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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