| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Washington University in St. Louis (Wash. U) | Research and Trials Toward the Ultimate Goal of Irradicating Batten Disease | 2023-12 | $50,000 |
| Batten Disease Support and Research Association | Research and Trials Toward the Ultimate Goal of Irradicating Batten Disease | 2023-12 | $37,000 |
| Rush University Medical Center | Research and Trials Toward the Ultimate Goal of Irradicating Batten Disease | 2023-12 | $25,000 |
| ...and 1 more grant made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Goldman Sachs Philanthropy Fund (GSPF) | 2022-12 | Community & Human Services | $10,000 |
| AmazonSmile Foundation | 2022-12 | General Support | $543 |
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Robert F Jensen | Treasurer | $0 | 2024-03-26 |
| Sara Kennicott | Secretary | $0 | 2023-12-31 |
| David Kennicott | Vice President | $0 | 2023-12-31 |
| Tracy Vanhoutan | President | $0 | 2023-12-31 |
| Revenues | FYE 12/2023 |
|---|---|
| Total grants, contributions, etc. | $39,963 |
| Program services | $0 |
| Investment income and dividends | $16,311 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $56,274 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2023-12 | 2024-03-26 | 990 | View PDF |
| 2022-12 | 2023-05-15 | 990 | View PDF |
| 2021-12 | 2022-05-16 | 990 | View PDF |
| 2020-12 | 2021-11-10 | 990 | View PDF |
| 2019-12 | 2020-12-11 | 990 | View PDF |
| ...and 4 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Oneguild | 501(c)(3) | New York, NY | $129,086 |
| The Leavitt Family Foundation | 501(c)(3) | Longwood, FL | $55,000 |
| Fried Family Fund | 501(c)(3) | Henderson, NV | $212,670 |
| Burrows Hill Foundation To Fight Friedreich's Ataxia | 501(c)(3) | Annapolis, MD | $179,427 |
| Cure for Ibd | 501(c)(3) | Basking Ridge, NJ | $47,640 |
| The Mossy Foot Project | 501(c)(3) | Ventura, CA | $217,645 |
| Lupus Foundation of Northern California | 501(c)(3) | San Jose, CA | $243,518 |
| Asthma and Allergy Foundation of America New England Chapter | 501(c)(3) | Braintree, MA | $163,212 |
| Krabbeconnect | 501(c)(3) | Rosemount, MN | $201,297 |
| Kids with Courage | 501(c)(3) | Lees Summit, MO | $134,350 |
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