Program areas at Organic Acidemia Association Corporation
Publishes a newsletter three times a year to provide information to parents and health professionals on updates, editorials, and letters from and for affected families. Monitors private/public Facebook group with other social media presence on Twitter, Instagram and LinkedIn.Hosted a combined family conference with HCU and PAF -- June 2022 in Bethesda MD.OAA is hosting a Webinar about the OrCam device for visually impaired November 2022.Hosted a Webinar - AllStripes & OAA: Accelerating research for MMA & PA December 2022.Social media campaigns created by University of Minnesota students in collaboration with OAA.Collaborated with Rare Science, Inc. to send Rare Bears to OAA children.
Awarded $4,000 research grant to National Research Councils Institute of Biophysics in Palermo, Italy to identify potential treatment for cobalamin C (cblC) deficiency.Awarded a $10,000 research grant to the Healthwell Foundation to assist familys copayments.
Grants made by Organic Acidemia Association Corporation
Who funds Organic Acidemia Association Corporation
Grants from foundations and other nonprofits
Personnel at Organic Acidemia Association Corporation
| Name | Title | Compensation | Date of data |
|---|
| Kathy Stagni | Executive Director | $45,000 | 2023-09-27 |
| Karen Dalton | Finance Director | $0 | 2022-12-31 |
Financials for Organic Acidemia Association Corporation
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $62,835 | $765,413 | -91.8% |
| Program services | $34,966 | $5,000 | 599.3% |
| Investment income and dividends | $11,170 | $0 | 999% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $-591 | $0 | -999% |
| Net income from fundraising events | $737 | $2,930 | -74.8% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $109,117 | $773,343 | -85.9% |
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|---|
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| Blue Caboose Childrens Fund | 501(c)(3) | Mckinney, TX | $60,876 |
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Data update history
December 2, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
May 19, 2023
Updated personnel
Identified 4 new personnel
October 19, 2021
Posted financials
Added Form 990EZ for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchState / local levelTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 9040 Duluth St
- Golden Valley, MN 55427
- Metro area
- Minneapolis-St. Paul-Bloomington, MN-WI
- County
- Hennepin County, MN
- Website URL
- oaanews.org/Â
- Phone
- (763) 559-1797
IRS details
- EIN
- 48-1038050
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1991
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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