EIN 61-1860696

Patients Rising

IRS 501(c) type
501(c)(4)
Num. employees
0
City
Year formed
2017
Most recent tax filings
2023-12-01
Description
Patients Rising Now advocates for the rights of patients with chronic and life-threatening illnesses. They work at the community, state, and federal levels to activate patients in support of reforms and legislation aimed at advancing patient access to care and affordability. Patients Rising Now informs policymakers on pressing issues related to access to care and affordability of care facing patients through their advocacy program based in Washington, DC. They offer a full suite of legislative action tools for both patients and advocates.
Also known as...
Patients Rising Now
Total revenues
$2,024,097
2023
Total expenses
$2,137,289
2023
Total assets
$182,694
2023
Num. employees
0
2023

Program areas at Patients Rising

The patient empowerment center at Patients Rising is dedicated to recruiting, developing, and mobilizing Patients and caregivers to become effective healthcare advocates. At its core, the empowerment center offers the advocacy masterclass, training participants in advocacy skills needed to navigate and influence healthcare policy at the state and federal level. The 15-week advocacy masterclass, modeled as an immersive mini-college course, provides a comprehensive curriculum on advocacy, including live virtual sessions with leading experts. To date, nearly 300 participants have graduated as certified patient advocates. Graduates also have the opportunity to join the Patients Rising senate, where they collaborate on advocacy committees and set policy priorities. This initiative is funded through corporate sponsorships, with additional support from our annual we the Patients fly-in, held each june. All programs are provided at no cost to Patients and caregivers.
The Patients Rising policy center is the driving force behind our mission to champion patient-centered policy and advocacy. As the central hub for policy strategy, this center merges the expertise of our former patient access & affordability project with the government affairs functions of Patients Rising now, creating a unified platform for patient-inspired policy solutions. At the heart of this initiative is the newly launched patient senate, a body of trained advocates who bring their voices directly into the policymaking process. The patient senate sets priorities based on the needs of Patients across the nation, ensuring that legislative agendas reflect real-life healthcare challenges. This group works closely with policy experts to provide insight into pressing healthcare issues, giving Patients an active role in shaping solutions that improve access and affordability. Through the policy center, Patients Rising will identify key areas for analysis and engage in innovative policy development to address healthcare challenges. Supported by corporate members, this center enables us to lead the way in advocating for practical, patient-focused reforms at both state and federal levels. The Patients Rising policy center not only sets our legislative agenda but also ensures that the patient perspective remains at the core of policy decisions.
Patients Rising studios is built on the belief that stories have the power to change perspectives, drive action, and shift the narrative of american healthcare. By amplifying the voices of Patients, we aim to reshape the healthcare conversation, bringing authentic experiences to the forefront of policy debates and public awareness. Through a portfolio of high-quality media platforms, Patients Rising storytelling connects audiences with real-life patient stories that reveal the human impact of healthcare policies. These stories not only highlight the struggles Patients face with access and affordability but also celebrate resilience, advocacy, and the pursuit of better healthcare outcomes. Our storytelling platform has been embraced by members of congress, major media outlets, and influencers to make complex policy issues accessible and relatable to a wider audience. Featuring the Patients Rising podcast, healthcare policy pop, and always on call podcasts as well as other video and audio storytelling properties. Each is designed to uplift patient perspectives, deepen public understanding, and foster advocacy for meaningful change. Through Patients Rising storytelling, we bring the reality of healthcare challenges to light, empowering Patients and sparking necessary reforms.

Grants made by Patients Rising

GranteeGrant descriptionAmount
Patients RisingSupport Patient Advo$223,987

Personnel at Patients Rising

NameTitleCompensation
Joseph D KeenanChief Digital Ofcr$85,000
Robert MacKay JimesonExecutive Director$8,333
Rachel DerbyPast Executive Director$75,872
Teressa WilcoxChief Mission Ofcr / Chief Missio / Executive Director$110,000
Robert GoldbergDirector$0
...and 2 more key personnel

Financials for Patients Rising

RevenuesFYE 12/2023
Total grants, contributions, etc.$2,024,097
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$2,024,097

Form 990s for Patients Rising

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-14990View PDF
2022-122023-05-22990View PDF
2021-122022-09-04990View PDF
2020-122021-08-11990OView PDF
2020-122021-07-30990View PDF
...and 2 more Form 990s
Data update history
January 7, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 4, 2025
Updated personnel
Identified 3 new personnel
January 3, 2025
Used new vendors
Identified 1 new vendor, including
August 30, 2024
Updated personnel
Identified 3 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Social advocacy organizationsMedical research organizationsHeadquarter / parent organizations
Issues
Health
Characteristics
MembershipsPolitical advocacyConducts researchNo full-time employees
General information
Address
11710 Plaza America Dr 2000
Reston, VA 20190
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
Fairfax County, VA
Website URL
patientsrising.org/ 
Phone
(202) 750-1186
IRS details
EIN
61-1860696
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2017
Eligible to receive tax-deductible contributions (Pub 78)
No
Categorization
NTEE code, primary
H01: Medical Research Alliances and Advocacy
NAICS code, primary
813319: Social Advocacy Organizations
Parent/child status
Central organization
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