Conquering Congenital Heart Disease / Conquering CHD

Learning your child has Congenital Heart Disease can be overwhelming. Many children with Congenital Heart Disease need life saving surgery or intervention in the first few weeks or months of their life. This leads to important medical decisions about the care of your child, often in a short amount of time and under stress. However, the ability to get important information about where your child will get their treatment is limited. The organization is working to address this issue on many levels. We empower patients and families directly through the use of the guided questions tool. Given to families at the time of diagnosis, this list of questions offers support and confidence when talking to doctors, surgeons and the care team about quality, what to expect when in the hospital, and beyond. Although widely distributed.

The organization continues to grow our direct impact through the implementation of a state chapter infrastructure. While independent entities, our state chapters are provided with administrative and leadership support, branded resources, core care package materials and group exemption through the national organization. This program was discontinued december 2023.