Program areas at Pediatric Epilespy Surgery Alliance
Information and resources:the Alliance is a trusted source of information for parents and caregivers, school teams, and aligned professionals. Through a variety of awareness initiatives, partnerships, programs, a biennial family conference, resources, and tools.
Research:the Alliance initiates and funds research to better understand - and improve - outcomes after Surgery. This includes our global Pediatric epilepsy Surgery registry, The only patient-powered (by parent proxy) study to understand The medical and developmental trajectory after epilepsy Surgery in childhood.
ADVOCACY & COLLABORATION:WE MOVE OUR MISSION FORWARD BY COLLABORATING AND ADVOCATING WITH HIGH-IMPACT ORGANIZATIONS. WE DO THIS THROUGH OUR ACTIVE PARTICIPATION IN ALLIANCES WITH OTHER ORGANIZATIONS, INCLUDING: - Perkins School for the Blind- the Council of Parent Attorneys and Advocates- American Brain Coalition; - the Rare Epilepsies Network; - Epilepsy Learning Healthcare System of the Epilepsy Foundation of America; - Infantile Spasms Actions Network; - the Rare and Catastrophic Seizures Consortium; and, - the Epilepsy Leadership Council of the American Epilepsy Society.
Who funds Pediatric Epilespy Surgery Alliance
Grants from foundations and other nonprofits
Personnel at Pediatric Epilespy Surgery Alliance
| Name | Title | Compensation | Date of data |
|---|
| Monika Jones, JD | Founder, Executive Director | $57,800 | 2023-12-07 |
| Audrey Vernick | Director, Patient and Family Advocacy | | 2023-12-07 |
| Ufuoma Ogaga | Controller | | 2023-12-07 |
| Matt Flesch | Board Member | $0 | 2023-12-07 |
| Kevin O'Connor | Treasurer | $0 | 2022-12-31 |
| ...and 3 more key personnel |
Financials for Pediatric Epilespy Surgery Alliance
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $281,182 | $239,432 | 17.4% |
| Program services | $41,501 | $0 | 999% |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $-2,062 | $0 | -999% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $522 | -100% |
| Total revenues | $320,621 | $239,954 | 33.6% |
Organizations like Pediatric Epilespy Surgery Alliance
| Organization | Type | Location | Revenue |
|---|
| The Neuromuscular Disease Foundation | 501(c)(3) | Beverly Hills, CA | $442,823 |
| Wescoe Foundation for Pulmonary Fibrosis | 501(c)(3) | Coopersburg, PA | $153,735 |
| Fans for the Cure | 501(c)(3) | New York, NY | $170,109 |
| Spina Bifida Association of North Texas | 501(c)(3) | Arlington, TX | $122,995 |
| Illinois Spina Bifida Association | 501(c)(3) | Chicago, IL | $282,397 |
| The Als Association - Rhode Island Chapter | 501(c)(3) | Warwick, RI | $379,498 |
| The Als Association - Als Association MNNDSD Chapter | 501(c)(3) | Saint Paul, MN | $542,906 |
| Epilepsy Foundation of Virginia | 501(c)(3) | Charlottesville, VA | $271,192 |
| Als in the Heartland | 501(c)(3) | Omaha, NE | $848,401 |
| Epilepsy Foundation of Idaho | 501(c)(3) | Boise, ID | $175,229 |
Data update history
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,465 from AmazonSmile Foundation December 7, 2023
Updated personnel
Identified 7 new personnel
November 29, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 26, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersMedical disciplines
Characteristics
Political advocacyConducts researchFundraising eventsProvides scholarshipsTax deductible donationsAccepts online donations
General information
- Address
- 969 Colorado Blvd 101
- Los Angeles, CA 90041
- Metro area
- Los Angeles-Long Beach-Anaheim, CA
- County
- Los Angeles County, CA
- Website URL
- epilepsysurgeryalliance.org/Â
- Phone
- (833) 675-3335
IRS details
- EIN
- 45-2571898
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2011
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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