Prader-Willi California Foundation

Support & advocacy programs pwcf provided quarterly support group meetings for parents, and online support meetings for people with pws. Supported three pws clinics throughout the state treating hundreds of children and adults with pws. Pwcf facilitated support groups, wrote letters of advocacy, and accompanied parents and family members to school meetings, regional center meetings, and hearings. Each of these programs served to provide families with networking and support opportunities so they feel less isolated and more connected with other pws families and professionals. Pwcf provided support to families during covid, making sure they were aware of health updates, and vaccination access.pwcf also significantly revamped its website to enhance functionality and provide the most up to date resources to its members and the community.

Educational programs - pwcf held our annual state conference and provided critical education to parents, teachers, physicians, and other professional care providers. We produced a pws behavior management training series, provided dozens of educational in-service training sessions to schools, families, professional providers, and adult residential facilities providers throughout California. Pwcf also held webinars on nutrition, iep training, and finanical planning to provide additional support to members. Pwcf produced a montlhy enews and four quarterly newsletters that contained educational articles, research studies and subject recruitment opportunities, support opportunities, and other valuable information. We distributed educational dvds, books, and other educational materials.

Awareness programs - Prader-Willi California Foundation held numerous events to raise the public's awareness of pws including: a statewide virtual walkathon event that was livestreamed; producing an annual holiday greeting containing information about pws.