| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Global Genes | Data Collection & Biorepository | 2022-12 | $100,000 |
| Children's Hospital Colorado Foundation | Coordinated Care for 8P | 2022-12 | $52,500 |
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Silicon Valley Community Foundation (SVCF) | 2022-12 | Health | $150,000 |
| Network for Good | 2022-12 | Unrestricted | $71,574 |
| Alaska Community Foundation (ACF) | 2022-12 | Operational Support | $35,490 |
| ...and 6 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Bina Shah | Founderchief E | $0 | 2023-07-14 |
| Shannon Clarke | Director Secretary | $0 | 2022-12-31 |
| Mehul Shah | Treasurer Secretary | $0 | 2021-12-31 |
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $599,258 |
| Program services | $0 |
| Investment income and dividends | $12,383 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $611,641 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-12 | 2023-07-14 | 990 | View PDF |
| 2021-12 | 2022-10-24 | 990 | View PDF |
| 2020-12 | 2021-05-24 | 990 | View PDF |
| 2020-12 | 2021-05-04 | 990 | View PDF |
| 2019-12 | 2020-11-19 | 990 | View PDF |
| ...and 1 more Form 990 | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| The Chris Carrino Foundation for FSHD | 501(c)(3) | Marlboro, NJ | $271,566 |
| Huntington's Disease Youth Organization of America | 501(c)(3) | Livonia, MI | $220,565 |
| Congenital Heart Defect Coalition | 501(c)(3) | Butler, NJ | $193,986 |
| Bardet Biedl Syndrome Foundation | 501(c)(3) | West Chester, PA | $372,565 |
| The Bow Foundation | 501(c)(3) | Charlottesville, VA | $370,375 |
| The Bev Hartig Huntingtons Disease Foundation | 501(c)(3) | Fishers, IN | $295,171 |
| Believing for Bryleigh Foundation | 501(c)(3) | New Braunfels, TX | $191,414 |
| Spastic Children's Endowment Foundation | 501(c)(3) | Chatsworth, CA | $2,460,440 |
| United Cerebral Palsy of Alabama | 501(c)(3) | Anniston, AL | $1,672,994 |
| CACNA1A Foundation | 501(c)(3) | Norwalk, CT | $385,860 |
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