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EIN 82-4433613

Rare Access Action Project

IRS 501(c) type
501(c)(4)
Num. employees
0
City
Washington
State
District of Columbia
Year formed
2018
Most recent tax filings
2023-12-01
NTEE code, primary
Z99: Unknown
Description
Rare Access Action Project explores creative policy solutions to address structural issues in access and coverage for rare disease patients. It engages in research, public education, issue advocacy, and lobbying activities to ensure they have access to the care and treatments they need.
Total revenues
$211,979
2023
Total expenses
$983,520
2023
Total assets
$89,120
2023
Num. employees
0
2023

Program areas at Rare Access Action Project

RAAP is comitted to exploring policy solutions to adress structural issues in access and coverage. RAAP will engage with research, public education, issue advocacy, and lobbying activities to shine a light on the challenges facing rare disease patients and offer common sense solutions to them.

Grants made by Rare Access Action Project

GranteeAmount
NCSL Foundation for State Legislatures$106,900

Who funds Rare Access Action Project

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Pharmaceutical Research and Manufacturers of of America (PHRMA)General Contribution$200,000

Personnel at Rare Access Action Project

NameTitleCompensation
Jeff AndersFounder
Matt SalmonVice President of Government Affairs
Michael EgingChairman$195,000
Evan KozlowTreasurer of the Board$156,000

Financials for Rare Access Action Project

RevenuesFYE 12/2023
Total grants, contributions, etc.$211,500
Program services$0
Investment income and dividends$479
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$211,979

Form 990s for Rare Access Action Project

Fiscal year endingDate received by IRSFormPDF link
2023-122024-06-12990View PDF
2022-122023-08-03990View PDF
2021-122022-03-25990View PDF
2020-122021-06-30990View PDF
2019-122021-08-17990OView PDF
...and 1 more Form 990

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Wra Action FundBoulder, CO$312,500
Data update history
January 1, 2024
Received grants
Identified 1 new grant, including a grant for $200,000 from Pharmaceutical Research and Manufacturers of of America (PHRMA)
October 8, 2023
Posted financials
Added Form 990 for fiscal year 2022
September 28, 2023
Used new vendors
Identified 2 new vendors, including , and
August 11, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 17, 2023
Updated personnel
Identified 3 new personnel
Nonprofit Types
No nonprofit types found
Issues
Health
Characteristics
Political advocacyNo full-time employees
General information
Address
1012 14th St NW 500
Washington, DC 20005
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
District of Columbia, DC
Website URL
rareaccessactionproject.org/ 
Phone
(202) 731-1275
IRS details
EIN
82-4433613
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2018
Eligible to receive tax-deductible contributions (Pub 78)
No
Categorization
NTEE code, primary
Z99: Z99
Parent/child status
Independent
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