Program areas at Rare Cancer Research Foundation
Ppoi (formerly h37) is on a mission to create exceptional outcomes for individuals facing advanced Cancer by pushing the boundaries of science, Research, and clinical innovations. Working in deep partnership with a small group of clients with advanced cancers, ppoi explores the detailed molecular and clinical characteristics of individual client's disease to help them and their clinical team make more data-informed decisions about their treatment journey. We have already seen the success of this program in the first personalized vaccine validated with mass spectrometry in the country as well as daily wins as we work to navigate through this complex and ever-changing landscape on behalf of these patients.
A program initiated in 2023 to develop a unified platform to host combined molecular and clinical Rare Cancer data which will be shared broadly with the Cancer Research community.
Pattern.org is a groundbreaking platform that allows rcrf to work directly with Cancer patients across the country to identify patients eligible to donate tissue to Research, educate those patients on Research opportunities, consent them into such Research programs, and then coordinate the bio-logistics of moving their tissue from their local hospitals to world-class Research institutions. Pattern.org was launched with great success in 2016, and in 2023, delivered high quality, viable, living Rare Cancer tissue from both academic and community hospitals across the u.s. to critical,innovative Research initiatives.
Grants made by Rare Cancer Research Foundation
Who funds Rare Cancer Research Foundation
Grants from foundations and other nonprofits
Personnel at Rare Cancer Research Foundation
Name | Title | Compensation | Date of data |
---|
Mark Laabs | Founder and Chairman | $0 | 2023-07-05 |
Barbara van Hare | Director of Foundation Partnerships | $80,000 | 2023-01-03 |
Benjamin Abram | Founding Director and Treasurer | $0 | 2023-01-03 |
Chris Heery | Director | $0 | 2022-12-31 |
Financials for Rare Cancer Research Foundation
Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
---|
Total grants, contributions, etc. | $2,606,409 | $37,638 | 6824.9% |
Program services | $891,959 | $0 | 999% |
Investment income and dividends | $0 | $0 | - |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $5,592 | $0 | 999% |
Total revenues | $3,503,960 | $37,638 | 9209.6% |
Organizations like Rare Cancer Research Foundation
Organization | Type | Location | Revenue |
---|
Texas Oncology Foundation | 501(c)(3) | Dallas, TX | $1,254,018 |
CURE Childhood Cancer | 501(c)(3) | Atlanta, GA | $10,192,185 |
Nevada Cancer Research Foundation | 501(c)(3) | Las Vegas, NV | $2,425,780 |
TJ Martell Foundation for Cancer Research | 501(c)(3) | Nashville, TN | $2,568,721 |
Tower Cancer Research Foundation (TCRF) | 501(c)(3) | Beverly Hills, CA | $2,539,108 |
Lung Cancer Research Foundation (LCRF) | 501(c)(3) | New York, NY | $6,387,172 |
Childrens Cancer Therapy Development Institute | 501(c)(3) | Hillsboro, OR | $2,897,660 |
Cancer Research and Treatment Fund | 501(c)(3) | New York, NY | $1,026,414 |
Samuel Waxman Cancer Research Foundation (SWCRF) | 501(c)(3) | New York, NY | $4,008,774 |
Israel Cancer Research Fund | 501(c)(3) | New York, NY | $7,728,171 |
Data update history
January 12, 2025
Used new vendors
Identified 1 new vendor, including
August 2, 2024
Received grants
Identified 2 new grant, including a grant for $600,000 from LR Foundation August 23, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 19, 2023
Updated personnel
Identified 1 new personnel
July 27, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsCorporate foundationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disordersCancer
Characteristics
Conducts researchTax deductible donationsAccepts online donations
General information
- Address
- 703 Foster St
- Durham, NC 27701
- Metro area
- Durham-Chapel Hill, NC
- County
- Durham County, NC
- Website URL
- rarecancer.org/Â
- Phone
- (919) 827-8373
IRS details
- EIN
- 46-3405526
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2013
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H30: Cancer Research
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Not Operate or Solicit for Charitable Purposes
- Charity Registration status
- Delinquent
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0289508
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2025-02-05
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