EIN 46-3405526

Rare Cancer Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
10
City
Year formed
2013
Most recent tax filings
2023-12-01
NTEE code, primary
Description
RCRF cures rare cancers by catalyzing effective research, accelerating the deployment of promising therapies, and working directly with cancer patients.
Total revenues
$3,503,960
2023
Total expenses
$2,167,619
2023
Total assets
$3,033,890
2023
Num. employees
10
2023

Program areas at Rare Cancer Research Foundation

Ppoi (formerly h37) is on a mission to create exceptional outcomes for individuals facing advanced Cancer by pushing the boundaries of science, Research, and clinical innovations. Working in deep partnership with a small group of clients with advanced cancers, ppoi explores the detailed molecular and clinical characteristics of individual client's disease to help them and their clinical team make more data-informed decisions about their treatment journey. We have already seen the success of this program in the first personalized vaccine validated with mass spectrometry in the country as well as daily wins as we work to navigate through this complex and ever-changing landscape on behalf of these patients.
A program initiated in 2023 to develop a unified platform to host combined molecular and clinical Rare Cancer data which will be shared broadly with the Cancer Research community.
Pattern.org is a groundbreaking platform that allows rcrf to work directly with Cancer patients across the country to identify patients eligible to donate tissue to Research, educate those patients on Research opportunities, consent them into such Research programs, and then coordinate the bio-logistics of moving their tissue from their local hospitals to world-class Research institutions. Pattern.org was launched with great success in 2016, and in 2023, delivered high quality, viable, living Rare Cancer tissue from both academic and community hospitals across the u.s. to critical,innovative Research initiatives.

Grants made by Rare Cancer Research Foundation

GranteeGrant descriptionAmount
Dana-Farber Cancer InstituteResearch$130,000

Who funds Rare Cancer Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
LR FoundationResearch$600,000
American Online Giving FoundationGeneral Support$6,366
Pfizer FoundationMatching Gifts$400

Personnel at Rare Cancer Research Foundation

NameTitleCompensation
Mark LaabsFounder and Chairman$0
Barbara van HareDirector of Foundation Partnerships$80,000
Benjamin AbramFounding Director and Treasurer$0
Chris HeeryDirector$0

Financials for Rare Cancer Research Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$2,606,409
Program services$891,959
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$5,592
Total revenues$3,503,960

Form 990s for Rare Cancer Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-05990View PDF
2022-122023-07-05990View PDF
2021-122022-11-14990View PDF
2020-122021-11-12990View PDF
2019-122021-03-01990View PDF
...and 5 more Form 990s
Data update history
January 12, 2025
Used new vendors
Identified 1 new vendor, including
August 2, 2024
Received grants
Identified 2 new grant, including a grant for $600,000 from LR Foundation
August 23, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 19, 2023
Updated personnel
Identified 1 new personnel
July 27, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsCorporate foundationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disordersCancer
Characteristics
Conducts researchTax deductible donationsAccepts online donations
General information
Address
703 Foster St
Durham, NC 27701
Metro area
Durham-Chapel Hill, NC
County
Durham County, NC
Website URL
rarecancer.org/ 
Phone
(919) 827-8373
IRS details
EIN
46-3405526
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2013
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Not Operate or Solicit for Charitable Purposes
Charity Registration status
Delinquent
FTB status revoked
Not revoked
AG Registration Number
CT0289508
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-02-05
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