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EIN 86-2999172

Rare Disease Company Coalition

IRS 501(c) type
501(c)(6)
Num. employees
0
City
Washington
State
District of Columbia
Year formed
2021
Most recent tax filings
2023-12-01
NTEE code, primary
S41: Promotion of Business
Description
Rare Disease Company Coalition promotes the common business interests of the U.S. rare disease pharmaceutical sector by providing policy advocacy services at both the federal and state levels through education, lobbying, advertising, public outreach, and patient and industry meetings. The organization is based in Washington, DC.
Total revenues
$958,500
2023
Total expenses
$853,798
2023
Total assets
$581,876
2023
Num. employees
0
2023

Program areas at Rare Disease Company Coalition

Provide policy advocacy services for Rare Disease companies at the federal level.

Personnel at Rare Disease Company Coalition

NameTitleCompensation
Graham OwensExecutive Director$0
Chris PorterTreasurer$0
Kerryn LawsonPast Treasurer$0
Deirdre ParsonsPresident$0
Michael DimatteoVice President$0
...and 2 more key personnel

Financials for Rare Disease Company Coalition

RevenuesFYE 12/2023
Total grants, contributions, etc.$0
Program services$958,500
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$958,500

Form 990s for Rare Disease Company Coalition

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-14990View PDF
2022-122023-11-15990View PDF
2021-122023-05-17990View PDF
Data update history
February 1, 2024
Updated personnel
Identified 2 new personnel
January 9, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 8, 2024
Updated personnel
Identified 6 new personnel
December 27, 2023
Used new vendors
Identified 1 new vendor, including
July 5, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Trade associationsBusiness and community development organizations
Issues
HealthEducationDiseases and disordersBusiness and industry
Characteristics
MembershipsNo full-time employees
General information
Address
200 Massachusetts Ave NW
Washington, DC 20001
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
District of Columbia, DC
Website URL
rarecoalition.com/ 
Phone
(202) 809-7357
IRS details
EIN
86-2999172
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2021
Eligible to receive tax-deductible contributions (Pub 78)
No
Categorization
NTEE code, primary
S41: Promotion of Business
NAICS code, primary
813910: Trade Associations
Parent/child status
Independent
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