Program areas at Recurrent Respiratory Papillomatosis Foundation
Recurrent Respiratory Papillomatosis is a disease in which tumors grow inside the larynx, primarily on the vocal cords, but sometimes spreading to the trachea and even the lungs. It affects both children and adults. Research has detemined that the human papilloma virus, is present in these repiratory tumors. These growths are often associated with two specific types of the virus whare are also found in genital and cervical warts. There is no known cure to rrp. The rrp Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, treatment and cure of rrp by encouraging and participating in promising rrp research studies.
Privided patient advocacy and support, via webite, in person meetings, and web support
Who funds Recurrent Respiratory Papillomatosis Foundation
Grants from foundations and other nonprofits
Personnel at Recurrent Respiratory Papillomatosis Foundation
Name | Title | Compensation | Date of data |
---|
Bill Stern | Director Chief Financial Officer | $0 | 2023-08-03 |
Elizabeth Volz | Director Patient Advocacy | $0 | 2021-10-31 |
Lisa Tansey | Director of Donor Engagement | $0 | 2021-10-31 |
Chris Neuberger | Treasurer | $0 | 2022-10-31 |
Kim McClellan | President | $0 | 2022-10-31 |
Financials for Recurrent Respiratory Papillomatosis Foundation
Revenues | FYE 10/2023 | FYE 10/2022 | % Change |
---|
Total grants, contributions, etc. | $399,839 | $296,784 | 34.7% |
Program services | $0 | $8,500 | -100% |
Investment income and dividends | $0 | $0 | - |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $504 | -100% |
Total revenues | $399,839 | $305,788 | 30.8% |
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Bleeding Disorders Association of South Carolina | 501(c)(3) | Greenville, SC | $370,179 |
Ebod Foundation | 501(c)(3) | Chesterbrook, PA | $102,816 |
Resurrecting Lives Foundation | 501(c)(3) | Dublin, OH | $167,887 |
Beheadstrong | 501(c)(3) | Kansas City, KS | $113,921 |
Brain Society of California | 501(c)(3) | Woodland Hills, CA | $114,165 |
A Cure In Sight | 501(c)(3) | Raleigh, NC | $641,566 |
Alliance for Fertility Preservation | 501(c)(3) | Lafayette, CA | $225,173 |
The Minnesota Eye Foundation | 501(c)(3) | Minnetonka, MN | $153,552 |
StacheStrong | 501(c)(3) | Vestal, NY | $690,008 |
Diabesity Institute | 501(c)(3) | Seattle, WA | $254,998 |
Data update history
September 28, 2023
Posted financials
Added Form 990 for fiscal year 2022
September 24, 2023
Used new vendors
Identified 1 new vendor, including
June 13, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
May 18, 2023
Updated personnel
Identified 5 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- PO Box 6643
- Lawrenceville, NJ 08648
- Metro area
- Trenton-Princeton, NJ
- County
- Mercer County, NJ
- Website URL
- rrpf.org/Â
- Phone
- (405) 596-9805
IRS details
- EIN
- 52-1798693
- Fiscal year end
- October
- Taxreturn type
- Form 990
- Year formed
- 1992
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G40: Diseases of Specific Organs
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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