Program areas at RSRT
The organization provides funding to leading Research institutions and companies working on Rett Syndrome and related mecp2 disorders.
The organization sponsors scientific workshops that bring the leading Rett researchers together with elite scientists in synergistic fields to exchange data and set Research direction.
The organization provides funding to leading Research institutions working on Rett Syndrome and related mecp2 disorders. Research is aimed at 1) restoring levels of mecp2 protein, 2) identifying objective tools to measure Rett symptoms 3) establish a clinical trial network 4) identify function of mecp2 protein.
The organization sponsors scientific workshops that bring the leading Rett researchers together with elite scientists in synergistic fields to exchange data and set Research direction.
Who funds Rett Syndrome Research Trust (RSRT)
Grants from foundations and other nonprofits
Personnel at RSRT
| Name | Title | Compensation | Date of data |
|---|
| Monica Coenraads | Chief Executive Officer | $220,000 | 2024-09-24 |
| Robert Deans, PhD | Chief Technology Officer , Head of Research | | 2024-09-24 |
| Tim Freeman | Chief Development Officer | $220,000 | 2024-09-24 |
| Randall Carpenter, MD | Chief Medical Officer | $165,000 | 2024-09-24 |
| Jana Von Hehn, PhD | Chief Scientific Officer , Head of Clinical Development | $203,333 | 2024-09-24 |
| ...and 7 more key personnel |
Financials for RSRT
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $8,080,684 | $7,028,813 | 15% |
| Program services | $106,950 | $39,122 | 173.4% |
| Investment income and dividends | $333,088 | $30,209 | 1002.6% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $3,093 | $-151 | 2148.3% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $8,523,815 | $7,097,993 | 20.1% |
Organizations like RSRT
| Organization | Type | Location | Revenue |
|---|
| Open Medicine Foundation | 501(c)(3) | Agoura Hills, CA | $6,058,625 |
| Alzheimer's Research Foundationfisher Center | 501(c)(3) | New York, NY | $7,084,008 |
| American Federation for Aging Research (AFAR) | 501(c)(3) | New York, NY | $15,127,134 |
| Childhood Arthritis and Rheumatology Research Alliance | 501(c)(3) | Washington, DC | $10,561,848 |
| Pediatric Cancer Research Foundation (PCRF) | 501(c)(3) | Irvine, CA | $3,117,985 |
| Children's Health Foundation / Children's Medical Research Inc | 501(c)(3) | Oklahoma City, OK | $5,543,428 |
| Scleroderma Research Foundation (SRF) | 501(c)(3) | San Francisco, CA | $8,418,038 |
| Norn Group | 501(c)(3) | San Francisco, CA | $2,528,167 |
| Foundation For Neurologic Diseases | 501(c)(3) | Newburyport, MA | $4,406,988 |
| The Anesthesia Patient Safety Foundation (APSF) | 501(c)(3) | Schaumburg, IL | $3,325,369 |
Data update history
September 24, 2024
Updated personnel
Identified 3 new personnel
August 30, 2024
Updated personnel
Identified 1 new personnel
August 26, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 25, 2024
Received grants
Identified 34 new grant, including a grant for $200,000 from Crush Rett Syndrome Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchOperates internationallyNational levelReceives government fundingTax deductible donationsAccepts online donations
General information
- Address
- 67 Under Cliff Rd
- Trumbull, CT 06611
- Metro area
- Bridgeport-Stamford-Norwalk, CT
- County
- Greater Bridgeport Planning Region, CT
- Website URL
- reverserett.org/Â
- Phone
- (203) 445-0041
- Twitter profile
- @rsrtÂ
IRS details
- EIN
- 26-0687439
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2007
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H90: Medical Specialty Research
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0223183
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-10-16
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