EIN 58-1654301

Rheumatology Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
State
Year formed
1985
Most recent tax filings
2023-06-01
Description
The mission of the Rheumatology Research Foundation is to advance Research and training to improve the health of people with rheumatic diseases. Support Research & training that advances the prevention, treatment and cure of rheumatic diseases.
Related structure
Rheumatology Research Foundation is a subordinate organization under American College of Rheumatology.
Total revenues
$13,039,465
2023
Total expenses
$17,402,769
2023
Total assets
$70,496,543
2023
Num. employees
0
2023

Program areas at Rheumatology Research Foundation

Foundation programs support Research investigating the broad spectrum of rheumatic diseases, including but not limited to: juvenile idiopathic arthritis, osteoarthritis, pediatric systemic lupus erythematosus, rheumatoid arthritis, scleroderma, spondyloarthropathies, systemic lupus erythematosus, and vasculitis.please see schedule o for a continuation of program services.the Rheumatology Research Foundation maintains an extensive awards and grants portfolio, with 23 support mechanisms for rheumatologists and Rheumatology health professionals in the u.s. each grant application contains very specific eligibility and review criteria (details regarding these requirements are available at www.rheumresearch.org). All applications undergo rigorous peer review in their assigned study section, and are scored and ranked according to the review criteria and overall merit of the proposal. All study section recommendations are sent to the Foundation's scientific advisory council for qualification before being presented (blinded) to the Foundation board of directors for final approval. After the awards are made, all recipients are required to complete funding contracts with institutional sign-off, and must also submit annual reports on their progress, including financial reconciliation and assurance of compliance with Foundation policies (available on the website). All reports are reviewed by the Foundation's scientific advisory council to ensure compliance with programmatic, scientific, and fiscal and administrative polices and requirements. If a recipient is found to be in compliance and making reasonable progress (i.e., meeting project benchmarks), the next year of funding is approved for disbursement. If not, the award may be terminated. Such programmatic oversight allows for excellent stewardship of Foundation funds. In addition to regular oversight as described above, portfolio reviews are conducted every five years to ensure that funding mechanisms are effectively meeting the Foundation's goals outlined in the strategic plan. In addition, the Rheumatology Research Foundation abides by the following conflict of interest guidelines: guidelines for awarding of Foundation awards and grants i. The college will not permit any external entities to select (or influence the selection of) recipients of Foundation awards or grants.ii. The college will appoint independent committees to select recipients of Foundation awards or grants based on peer review of grant applications.iii. The college will not require recipients of Foundation awards or grants to meet with external entities.iv. The college will not permit any external entity that supports Foundation awards or grants to require intellectual property rights or royalties arising out of the grant-funded research.v.the college will not permit any external entity that supports Foundation awards or grants to control or influence manuscripts that arise from the grant-funded Research. The Foundation provides funding to help recruit students and residents into the subspecialty and supports investigators and practitioners working in the field of Rheumatology. Grants are awarded for different training opportunities, from undergraduate students to established investigators, building a more capable, robust team of Rheumatology professionals around the nation. In the last five years, researchers receiving Foundation funding have published 469 papers, received $114.8m in related nih funding and given 122 scientific presentations on their projects worldwide.the Foundation is a 501(c)(3) charitable organization dedicated to advancing treatment for people living with rheumatic disease and is the largest private funding source of Rheumatology Research and training in the united states. The organization has received a 4-star rating, the highest offered by charity navigator, for fifteen consecutive years based on good governance, sound fiscal management, and commitment to accountability and transparency. The organization has committed over $218m directly to Research and training since it was founded in 1985 by the granting of 4,406 individual awards.

Grants made by Rheumatology Research Foundation

GranteeGrant descriptionAmount
Partners Healthcare System / Brigham & Womens Hospital IncInnovative Research Award - Basic$788,724
Trustees of Boston UniversityInvestigator Award - Clinical$250,000
Regents of the University of MichiganInvestigator Award - Translational$250,000
...and 105 more grants made totalling $9,597,426

Who funds Rheumatology Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$108,100
ImpactAssetsGeneral Support$100,000
Zellis Family FoundationFellowship Training Awards$100,000
...and 19 more grants received totalling $609,440

Personnel at Rheumatology Research Foundation

NameTitleCompensation
Colleen MerkelVice President , Operations and Finance$0
Rachel MyslinskiExecutive Director$0
Rhonda ArmstrongSenior Director , Finance / Senior Director - Finance$0
Benjamin WalkuskiDirector , Ind Eng and Phil / Director , Individual Engagement$0
Katherine Butts-PuettSenior Director , Phil$0
...and 15 more key personnel

Financials for Rheumatology Research Foundation

RevenuesFYE 06/2023
Total grants, contributions, etc.$12,592,717
Program services$0
Investment income and dividends$853,682
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-407,000
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$66
Total revenues$13,039,465

Form 990s for Rheumatology Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-062024-05-04990View PDF
2022-062023-03-02990View PDF
2021-062022-04-14990View PDF
2020-062021-05-05990View PDF
2019-062020-08-14990View PDF
...and 9 more Form 990s
Data update history
July 19, 2024
Updated personnel
Identified 6 new personnel
July 13, 2024
Posted financials
Added Form 990 for fiscal year 2023
July 8, 2024
Received grants
Identified 5 new grant, including a grant for $100,000 from ImpactAssets
December 23, 2023
Received grants
Identified 7 new grant, including a grant for $100,000 from Zellis Family Foundation
August 9, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsChapter / child organizationsCharities
Issues
HealthMedical disciplines
Characteristics
Provides grantsConducts researchEndowed supportProvides scholarshipsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
2200 Lake Blvd Ne
Atlanta, GA 30319
Metro area
Atlanta-Sandy Springs-Alpharetta, GA
County
DeKalb County, GA
Website URL
rheumresearch.org/ 
Phone
(404) 633-3777
IRS details
EIN
58-1654301
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1985
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Subordinate organization
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Revoked
AG Registration Number
CT0262581
FTB Entity ID
4238214
AB 488 data last updated ("as-of") date
2024-11-06
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