| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Rettsyndromeorg | To Address the Needs of Families and To Facilitate Treatment and Research | 2021-12 | $40,000 |
| Rett Syndrome Research Trust (RSRT) | To Address the Needs of Families and To Facilitate Treatment and Research | 2021-12 | $10,000 |
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Colorado Gives Foundation | 2022-12 | General Purpose | $36,923 |
| American Online Giving Foundation | 2022-03 | General Support | $19,437 |
| Hackstock Family Foundation | 2022-12 | Ab - 07/28/22 09:51am Interview Form PF-19 | $5,000 |
| ...and 1 more grant received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Celeste Spiers | Treasurer | $0 | 2022-11-15 |
| Justin Allen | Vice President / Chairman / Director | $0 | 2021-12-31 |
| Heidi Hedges Greenall | Secretary | $0 | 2021-12-31 |
| Jim Schroath | President / Director | $0 | 2021-12-31 |
| Carrie Rose-Matens | Vice President Family Affair | $0 | 2019-12-31 |
| ...and 7 more key personnel | |||
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $447,552 |
| Program services | $0 |
| Investment income and dividends | $0 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $-221,505 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $226,047 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2021-12 | 2022-11-15 | 990 | View PDF |
| 2020-12 | 2021-11-15 | 990 | View PDF |
| 2019-12 | 2021-03-02 | 990 | View PDF |
| 2018-12 | 2020-06-08 | 990 | View PDF |
| 2017-12 | 2019-02-21 | 990 | View PDF |
| ...and 7 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Down Syndrome Association of Northwest Indiana | 501(c)(3) | Schererville, IN | $163,111 |
| Cystic Fibrosis Association of West Plains | 501(c)(3) | West Plains, MO | $89,818 |
| Central California Hemophilia Foundation | 501(c)(3) | Sacramento, CA | $186,755 |
| Down Syndrome Association of Tulsa | 501(c)(3) | Tulsa, OK | $77,002 |
| Sickle Cell Association | 501(c)(3) | Norfolk, VA | $104,916 |
| Lone Star Parkinson Society (LSPS) | 501(c)(3) | New Braunfels, TX | $67,019 |
| Down Syndrome Association of Brazos Valley | 501(c)(3) | College Station, TX | $104,621 |
| Rio Grande Down Syndrome Network | 501(c)(3) | Albuquerque, NM | $185,819 |
| Maryland Association for Parkinson Support | 501(c)(3) | Brooklandville, MD | $420,124 |
| Wobbly Feet Foundation | 501(c)(3) | Sarasota, FL | $74,449 |
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