EIN 88-1920584

Rory Belle Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Year formed
2022
Most recent tax filings
2023-12-01
Description
To bring one more day of joy to kids and families battling nars1 disease. To bring one more day of joey to kids and families battling nars1. Fundraising for nars1 disease research and treatments. Nars1 genetic research.
Total revenues
$214,750
2023
Total expenses
$5,234
2023
Total assets
$267,644
2023
Num. employees
0
2023

Program areas at Rory Belle Foundation

Nars1 genetic research accomplishments: continued fundraising to support future grant programs. Established a network of scientific resources and began collaboration on several key initiatives. Facilitated patient registery through outreach to nars1 population. Established biorepository.
Nars1 rare disease awarness accomplishments: board members attended several conferences. Received grant to fund translation services to better connect with non-english speaking patient population. Began selling Foundation branded merchandise.
Nars 1 drug repurposing accomplishments: collaborated with academic institution that completed initial screening analysis of available compounds. Held fundraising event to support future drug repurposing studies.

Who funds Rory Belle Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Blackbaud Giving FundGeneral Support$8,550
Osilas FoundationGeneral Operating$1,000
Pfizer FoundationMatching Gifts$250

Personnel at Rory Belle Foundation

NameTitleCompensation
Teri DeclercqVice President$0
Judy KjelstadDirector of Development$0
Rachel HeilmannPresident$0

Financials for Rory Belle Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$193,766
Program services$0
Investment income and dividends$3,499
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$16,680
Net income from gaming activities$0
Net income from sales of inventory$805
Miscellaneous revenues$0
Total revenues$214,750

Form 990s for Rory Belle Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-14990View PDF
2022-122023-11-15990EZView PDF
Data update history
September 21, 2024
Received grants
Identified 1 new grant, including a grant for $8,550 from The Blackbaud Giving Fund
July 16, 2024
Received grants
Identified 1 new grant, including a grant for $1,000 from Osilas Foundation
January 5, 2024
Posted financials
Added Form 990EZ for fiscal year 2022
January 5, 2024
Updated personnel
Identified 6 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Conducts researchFundraising eventsOperates internationallyGala fundraisersTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
8275 E 11th Ave 200621
Denver, CO 80220
Metro area
Denver-Aurora-Lakewood, CO
County
Denver County, CO
Website URL
therorybellefoundation.org/ 
Phone
(720) 432-8087
IRS details
EIN
88-1920584
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2022
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H00: Medical Research: General
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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