Program areas at Schizophrenia & Psychosis Acti
Awareness, Education, and Access:The Organization builds awareness of and educates about schizophrenia, psychosis and related disorders through extensive website resources, initiatives, social media outreach and participation in media interviews,webinars,and public programs. The Organization promotes medical professionals training and career development through digital education partnerships that offer continued education as well as attending and presenting at health education conferences.Additionally, The Organization provides administrative support, materials, and oversight for two differentsupport groups:1. Schizophrenia Alliance self-help/peer support groups, which are run by and for people diagnosed withpsychiatric brain disorders that include psychosis.2. Families for Care which is a peer support group for families of those with schizophrenia orschizophrenia-related brain illnesses.
Research:The Organization funds research such as:1. Seeking new disease biomarkers and other early disease indicators that could improve diagnosis andtreatment.2. Quantifying the societal costs of schizophrenia and related disorders, underscoring the countrysdevastating failure to provide appropriate medical care for people living with schizophrenia and theurgent need for policy changes to promote comprehensive solutions.3. Surveying caregivers of adults with schizophrenia or schizoaffective disorder to spotlight the diseasesnegative impact on finances, career, and family lives.
Policy & System-Level Change:The Organization backs federal, state, and local policies with the best chances to save lives, advocate forpatients rights to life-sustaining treatments/services and medical professionals ability to provide suchtreatments without judicial oversight. The Organization empowers community members to join movementsagainst discrimination of people with schizophrenia and psychosis disorders, including meetings with Congressmembers and by hosting capitol hill briefings.The Organization also promotes public awareness of anosognosia as a neurological condition; advancesinitiatives such as petitioning the World Health Organization to update its International Classification ofDiseases by accurately classifying anosognosia as a highly prevalent neurological condition to make it easier forpatients with anosognosia to receive proper care.
Grants made by Schizophrenia & Psychosis Acti
Who funds Schizophrenia & Psychosis Acti
Grants from foundations and other nonprofits
Personnel at Schizophrenia & Psychosis Acti
Name | Title | Compensation | Date of data |
---|
Gordon Lavigne | Chief Executive | $146,000 | 2024-07-10 |
Joel Founded | Executive Director | | 2023-05-04 |
Marissa E Shepherd | Director of Operations | $106,168 | 2023-12-31 |
Holly Krasa | Secretary | $0 | 2023-12-31 |
Angela Babaev | Board Chair | $0 | 2023-12-31 |
...and 6 more key personnel |
Financials for Schizophrenia & Psychosis Acti
Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
---|
Total grants, contributions, etc. | $1,522,530 | $1,578,295 | -3.5% |
Program services | $0 | $0 | - |
Investment income and dividends | $8,561 | $5,061 | 69.2% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $15,319 | $-35,017 | 143.7% |
Total revenues | $1,546,410 | $1,548,339 | -0.1% |
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International Dyslexia Association (IDA) | 501(c)(3) | Pikesville, MD | $2,197,837 |
EB Research Partnership | 501(c)(3) | New York, NY | $7,430,625 |
The National Fragile X Foundation | 501(c)(3) | Washington, DC | $1,802,073 |
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Data update history
August 31, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 30, 2024
Updated personnel
Identified 1 new personnel
August 26, 2024
Used new vendors
Identified 2 new vendors, including , and
May 18, 2024
Received grants
December 5, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingNational levelGala fundraisersTax deductible donationsAccepts online donations
General information
- Address
- 2308 Mount Vernon Ave Ste 207
- Alexandria, VA 22301
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- Alexandria city, VA
- Website URL
- sczaction.org/sardaa/Â
- Phone
- (240) 423-9432
IRS details
- EIN
- 33-1213657
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2008
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - Awaiting Reporting
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0253250
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-11-06
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