EIN 68-0087234

Scleroderma Research Foundation (SRF)

IRS 501(c) type
501(c)(3)
Num. employees
9
Year formed
1987
Most recent tax filings
2023-12-01
Description
The Scleroderma Research Foundation's mission is to find new and improved therapies as well as a cure for scleroderma by funding major research.
Total revenues
$8,418,038
2023
Total expenses
$6,487,599
2023
Total assets
$18,654,748
2023
Num. employees
9
2023

Program areas at SRF

The SRF Research Program: Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community. With an intense focus on identifying projects and investigators likely to move scleroderma research forward, the SRF funds a diverse portfolio of projects led by top-tier investigators.
SRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed. We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date, trusted and relevant news and information about complications, treatments, and related research through our website, webinars, annual patient forum, and monthly eNewsletter. And we deliver stories of impact that connect and inspire patients, as well as address issues related to diversity, equity, and inclusion that patients may encounter as they navigate diagnosis, treatment, and living with the disease.
CONQUEST is a global, perpetual, clinical trial platform developed by the SRF in coordination with partner biopharmaceutical companies to accelerate the clinical development of agents for scleroderma. CONQUEST is designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from phase 2b to phase 3 clinical trials. CONQUEST will make an enduring contribution to the scleroderma community by creating an ecosystem designed to enable rapid and efficient development of novel drugs for scleroderma patients.

Grants made by SRF

GranteeGrant descriptionAmount
Stanford UniversityResearch$673,018
University of UtahResearch$279,048
Hospital for Special Surgery (HSS)Research$168,444
...and 17 more grants made

Who funds Scleroderma Research Foundation (SRF)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Wright and Evnin Family FoundationMedical Research for Scleroderma$190,000
The Cantor Fitzgerald Relief Fund$150,000
Orange County Community Foundation (OCCF)Health and Wellness$100,000
...and 42 more grants received totalling $989,442

Personnel at SRF

NameTitleCompensation
Gregory Gordon, MD, JDChief Medical Officer
Gloria BlechaVice President , Programs and Operations$129,705
Joanne GoldExecutive Director$203,286
Hannah YoungDirector of Communications$110,376
Kate CeredonaDirector of Philanthropy$152,315
...and 6 more key personnel

Financials for SRF

RevenuesFYE 12/2023
Total grants, contributions, etc.$3,932,952
Program services$3,832,233
Investment income and dividends$904,546
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-258,948
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$7,255
Total revenues$8,418,038

Form 990s for SRF

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-28990View PDF
2022-122023-09-21990View PDF
2021-122022-06-09990View PDF
2020-122021-06-30990View PDF
2019-122021-06-03990View PDF
...and 10 more Form 990s
Data update history
November 25, 2024
Received grants
Identified 2 new grant, including a grant for $12,500 from Bob Woodruff Foundation
November 1, 2024
Updated personnel
Identified 2 new personnel
October 20, 2024
Posted financials
Added Form 990 for fiscal year 2023
October 20, 2024
Updated personnel
Identified 3 new personnel
October 19, 2024
Used new vendors
Identified 4 new vendors, including , , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchFundraising eventsCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
Address
220 Montgomery St Ste 484
San Francisco, CA 94104
Metro area
San Francisco-Oakland-Berkeley, CA
County
San Francisco County, CA
Website URL
srfcure.org/ 
Phone
(415) 834-9444
IRS details
EIN
68-0087234
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1987
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
064103
FTB Entity ID
1189994
AB 488 data last updated ("as-of") date
2024-12-31
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