EIN 43-1709945

Shwachman-Diamond Syndrome Foundation

Name: Shwachman-Diamond Syndrome Foundation financials for 2023
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

Florence

State

Kentucky

Year formed

1995

Most recent tax filings

2023-12-01

NTEE code, primary

G80: Specifically Named Diseases

Description

The Shwachman-Diamond Syndrome Foundation raises awareness of and supports research for the disease through educational conferences, publications such as newsletters and brochures, and awarding research grants. The foundation also conducts general operations, publishes newsletters and public service announcements, and provides family support to maintain public awareness of the syndrome. Programs include sponsoring and conducting various educational conferences about Shwachman-Diamond Syndrome.

Total revenues

$65,182

2023

Total expenses

$46,769

2023

Total assets

$268,839

2023

Num. employees

2023

Program areas at Shwachman-Diamond Syndrome Foundation

Provided research grants for the study of the rare disease Shwachman-Diamond Syndrome

Published newsletters,public service announcements and gave family support to keep public awareness of the disease. Conducted general operations.

Sponsored and conducted various educational conferences about Shwachman-Diamond Syndrome

Who funds Shwachman-Diamond Syndrome Foundation

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
AmazonSmile Foundation	2022-12	General Support	$1,406

Personnel at Shwachman-Diamond Syndrome Foundation

Name	Title	Compensation	Date of data
Joan Mowery	Acting President	$0	2023-11-10
Bryan Sample	Treasurer	$0	2022-12-31
Mary Balint	Secretary	$0	2022-12-31
Pamela Miller	Past Executive Director / Secretary	$0	2020-12-31
Christine James	President	$0	2018-12-31

Financials for Shwachman-Diamond Syndrome Foundation

Revenues	FYE 12/2023	FYE 12/2022	% Change
Total grants, contributions, etc.	$65,165	$65,637	-0.7%
Program services	$0	$0	-
Investment income and dividends	$17	$26	-34.6%
Tax-exempt bond proceeds	$0	$0	-
Royalty revenue	$0	$0	-
Net rental income	$0	$0	-
Net gain from sale of non-inventory assets	$0	$0	-
Net income from fundraising events	$0	$0	-
Net income from gaming activities	$0	$0	-
Net income from sales of inventory	$0	$0	-
Miscellaneous revenues	$0	$0	-
Total revenues	$65,182	$65,663	-0.7%

Form 990s for Shwachman-Diamond Syndrome Foundation

Fiscal year ending	Date received by IRS	Form	PDF link
2023-12	2024-08-12	990	View PDF
2022-12	2023-11-10	990	View PDF
2021-12	2022-10-20	990	View PDF
2021-12	2022-09-29	990	View PDF
2020-12	2021-11-24	990EZ	View PDF
...and 10 more Form 990s

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Data update history

January 21, 2024

Posted financials

Added Form 990 for fiscal year 2022

January 2, 2024

Received grants

Identified 1 new grant, including a grant for $1,406 from AmazonSmile Foundation

December 31, 2023

Used new vendors

Identified 1 new vendor, including

July 28, 2023

Posted financials

Added Form 990 for fiscal year 2021

June 27, 2023

Posted financials

Added Form 990EZ for fiscal year 2020

Nonprofit Types

Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities

Issues

HealthHuman servicesDiseases and disorders

Characteristics

Conducts researchPartially liquidatedFundraising eventsTax deductible donationsNo full-time employeesAccepts online donations

General information

Address: 106 Hillside Dr PO Box 6723; Florence, KY 41042
Metro area: Cincinnati, OH-KY-IN
County: Boone County, KY
Website URL: shwachman-diamond.org/
Phone: (513) 504-8402

IRS details

EIN: 43-1709945
Fiscal year end: December
Taxreturn type: Form 990
Year formed: 1995
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: G80: Specifically Named Diseases
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Independent

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Shwachman-Diamond Syndrome Foundation

Program areas at Shwachman-Diamond Syndrome Foundation

Who funds Shwachman-Diamond Syndrome Foundation

Personnel at Shwachman-Diamond Syndrome Foundation

Financials for Shwachman-Diamond Syndrome Foundation

Form 990s for Shwachman-Diamond Syndrome Foundation

Organizations like Shwachman-Diamond Syndrome Foundation

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