| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Pharmaceutical Research and Manufacturers of of America (PHRMA) | 2022-12 | General Contribution | $15,000 |
| Biotechnology Innovation Organization (BIO) | 2022-12 | Sponsorship | $10,000 |
| Pharmaceutical Research and Manufacturers of America Foundation | 2022-12 | Vaca Challenge Award | $7,500 |
| ...and 1 more grant received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Ashley Valentine | Executive Director | $81,949 | 2023-10-19 |
| Abby Tainter | Director of Operations | 2023-08-15 | |
| Maggie Jalowsky | Director of Advocacy at Sick | 2023-08-15 | |
| Margaret H Jalowsky | Director of Advocacy | $71,875 | 2022-12-31 |
| Abrina P Tainter | Operations Manager | $48,325 | 2022-12-31 |
| ...and 2 more key personnel | |||
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $30,447 |
| Program services | $377,500 |
| Investment income and dividends | $0 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $175,700 |
| Total revenues | $583,647 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-12 | 2023-10-19 | 990 | View PDF |
| 2021-12 | 2023-05-15 | 990 | View PDF |
| 2020-12 | 2023-05-15 | 990 | View PDF |
| 2020-12 | 2021-05-21 | 990 | View PDF |
| 2019-12 | 2021-03-30 | 990 | View PDF |
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Sunrise Community of Southwest Florida (UCP SWFL) | 501(c)(3) | Miami, FL | $2,807,698 |
| United Cerebral Palsy of West Central Wisconsin | 501(c)(3) | Eau Claire, WI | $1,011,185 |
| Martin Center Martin Center Sickle Cell Initiative | 501(c)(3) | Indianapolis, IN | $837,398 |
| Sickle Cell Disease Association of America Central Alabama Chapter | 501(c)(3) | Birmingham, AL | $500,890 |
| Down Syndrome Partnership of North Texas | 501(c)(3) | Fort Worth, TX | $230,544 |
| Turner Syndrome Society of the United States | 501(c)(3) | Houston, TX | $522,013 |
| Sickel Cell Disease Association of America (SCDAA) | 501(c)(3) | New Haven, CT | $234,393 |
| Rocky Mountain Hemophilia and Bleeding Disorder Association | 501(c)(3) | Bozeman, MT | $207,162 |
| Huntington's Disease Youth Organization of America | 501(c)(3) | Livonia, MI | $220,565 |
| James R Clark Memorial Sickle Cell Foundation | 501(c)(3) | Columbia, SC | $1,367,390 |
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